Loading...

Roberta Rehm, RN, PhD, FAAN

Title(s)Professor Emeritus, Family Health Care Nursing
SchoolSchool of Nursing
Address2 Koret Way
San Francisco CA 94143
Phone415-502-6762
vCardDownload vCard

    Collapse Overview 
    Collapse Overview
    My research focuses on understanding family management of children's complex chronic conditions. I use ethnographic methods to conduct field studies in the Symbolic Interaction tradition, focusing on the everyday life experiences of families within the context of community.

    Current Projects
    My most recent NIH funded study is entitled Youth with Complex Needs: Transition to Adulthood Plans (TAPS). This study is investigating family decision-making, and the process of planning for the transition to adulthood of youth with ongoing medical and developmental challenges. Along with youth and young adults, age 14-25, parents, educators, and health care providers are participating in this study.

    Recently, we have formed a community partnership with Support for Families of Children with Disabilities, a parent run, non-profit organization that has been providing information and support to families in San Francisco for over 20 years. Using principles of Community Based Participatory Research, and drawing upon our current data and the expertise of our community partners, we have developed an intervention to support parents and youth during the transition to adulthood. We are working on a pilot to test the feasibility of this intervention and hope to test its effectiveness to strengthen skills and confidence in the future.

    Other projects include a study of parents' needs, expectations, challenges, and successes during discharge from the NICU, and the transition to home for infants who are medically fragile. Data collection is complete for this study, and doctoral student Robin Bisgaard plans to use this data for her dissertation. Recently, emeriti faculty Betty Davies and I submitted a proposal to NICHD to investigate interactions between parents of children with complex or life-threatening conditions and the HCPs who care for their children. As Co-PIs, we will use observations and interviews to analyze factors and conditions that impact parent-HCP interactions during hospitalization in the NICU or on the Pediatric Oncology floor. We will describe best practices that facilitate effective and satisfying communications in the face of challenging circumstances.

    I have an ongoing committment to underserved and understudied populations, particularly Latino families. My doctoral advisee Juliet Chandler is currently studying how Latina immigrants, many of whom are undocumented and therefore have few resources, manage chronic illnesses.

    Collapse Research 
    Collapse Research Activities and Funding
    Youth with Complex Needs: Transition to Adulthood Plans
    NIH/NICHD R01HD049433Apr 1, 2007 - Feb 28, 2012
    Role: Principal Investigator
    Children Dependent on Technology--Family and School Care
    NIH/NINR R15NR007636May 15, 2001 - May 14, 2003
    Role: Principal Investigator
    FAMILY ADAPTATION IN CHILDHOOD ILLNESS
    NIH/NINR F31NR006841Aug 1, 1995
    Role: Principal Investigator

    Collapse ORNG Applications 
    Collapse Featured Videos
    Collapse Academic Senate

    Collapse Bibliographic 
    Collapse Publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Researchers can login to make corrections and additions, or contact us for help. to make corrections and additions.
    Newest   |   Oldest   |   Most Cited   |   Most Discussed   |   Timeline   |   Field Summary   |   Plain Text
    Altmetrics Details PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
    1. 3 Dimensions of Treatment Decision Making in Adolescents and Young Adults With Cancer. Cancer Nursing. 2020 Apr 13; Publish Ahead of Print. Kimberly A. Pyke-Grimm, Linda S. Franck, Bonnie Halpern-Felsher, Robert E. Goldsby, Roberta S. Rehm. .
      View in: Publisher Site   Mentions:
    2. Implementation of a multidisciplinary discharge videoconference for children with medical complexity: a pilot study. Pilot Feasibility Stud. 2020; 6:27. Ravid NL, Zamora K, Rehm R, Okumura M, Takayama J, Kaiser S. PMID: 32099662.
      View in: PubMed   Mentions:
    3. Nursing Surveillance for Deterioration in Pediatric Patients: An Integrative Review. J Pediatr Nurs. 2020 Jan - Feb; 50:59-74. Stotts JR, Lyndon A, Chan GK, Bekmezian A, Rehm RS. PMID: 31770679.
      View in: PubMed   Mentions:    Fields:    
    4. Best practices in implementing inpatient pediatric asthma pathways: a qualitative study. J Asthma. 2020 Jul; 57(7):744-754. Kaiser SV, Lam R, Cabana MD, Bekmezian A, Bardach NS, Auerbach A, Rehm RS. PMID: 31020879.
      View in: PubMed   Mentions:    Fields:    
    5. Treatment Decision-Making Involvement in Adolescents and Young Adults With Cancer. Oncol Nurs Forum. 2019 01 13; 46(1):E22-E37. Pyke-Grimm KA, Franck LS, Patterson Kelly K, Halpern-Felsher B, Goldsby RE, Kleiman A, Rehm RS. PMID: 30547960.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    6. Facilitators and Barriers to Interdisciplinary Communication between Providers in Primary Care and Palliative Care. J Palliat Med. 2019 03; 22(3):243-249. Dudley N, Ritchie CS, Rehm RS, Chapman SA, Wallhagen MI. PMID: 30383468.
      View in: PubMed   Mentions: 2     Fields:    Translation:Humans
    7. Please Ask Gently: Using Culturally Targeted Communication Strategies to Initiate End-of-Life Care Discussions With Older Chinese Americans. Am J Hosp Palliat Care. 2018 Oct; 35(10):1265-1272. Chi HL, Cataldo J, Ho EY, Rehm RS. PMID: 29514489.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    8. Can We Talk About It Now? Recognizing the Optimal Time to Initiate End-of-Life Care Discussions with Older Chinese Americans and Their Families. J Transcult Nurs. 2018 11; 29(6):532-539. Chi HL, Cataldo J, Ho EY, Rehm RS. PMID: 29478379.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    9. Please Ask Gently: Using Culturally Targeted Communication Strategies to Initiate End-of-Life Care Discussions with Chinese-American Older Adults (S703). Journal of Pain and Symptom Management. 2018 Feb 1; 55(2):657. Han-Lin Chi, Janine Cataldo, Evelyn Ho, Roberta Rehm. .
      View in: Publisher Site   Mentions:
    10. An exploratory qualitative study of life trajectories from preschool-age to young adulthood: Identifying early biologic sensitivity, facing challenges and moving forward. Adv Pediatr Res. 2018; 5(2). Alkon A, Boyce WT, Shulman A, Rehm RS. PMID: 30370336.
      View in: PubMed   Mentions:
    11. "It Feels More Real": An Interpretive Phenomenological Study of the Meaning of Video Games in Adolescent Lives. ANS Adv Nurs Sci. 2017 Oct/Dec; 40(4):E1-E17. Forsyth SR, Chesla CA, Rehm RS, Malone RE. PMID: 28990966.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    12. Familial Caregiver and Physician Perceptions of the Family-Physician Interactions During Interfacility Transfers. Hosp Pediatr. 2017 Jun; 7(6):344-351. Rosenthal JL, Li ST, Hernandez L, Alvarez M, Rehm RS, Okumura MJ. PMID: 28546453.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    13. Interfacility Transfers to General Pediatric Floors: A Qualitative Study Exploring the Role of Communication. Acad Pediatr. 2016 Sep-Oct; 16(7):692-9. Rosenthal JL, Okumura MJ, Hernandez L, Li ST, Rehm RS. PMID: 27109492.
      View in: PubMed   Mentions: 5     Fields:    Translation:Humans
    14. Do You Know My Child? Continuity of Nursing Care in the Pediatric Intensive Care Unit. Nurs Res. 2016 Mar-Apr; 65(2):142-50. Baird J, Rehm RS, Hinds PS, Baggott C, Davies B. PMID: 26938363.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    15. Facilitators of and Barriers to Interdisciplinary Communication and Collaboration in Palliative Care and Primary Care (S764). Journal of Pain and Symptom Management. 2016 Feb 1; 51(2):442-443. Nancy Dudley, Margaret Wallhagen, Christine Ritchie, Roberta Rehm. .
      View in: Publisher Site   Mentions:
    16. The Role of Health Advocacy in Transitions from Pediatric to Adult Care for Children with Special Health Care Needs: Bridging Families, Provider and Community Services. J Pediatr Nurs. 2015 Sep-Oct; 30(5):714-23. Okumura MJ, Saunders M, Rehm RS. PMID: 26228309.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    17. Depression and Self-Rated Health Among Rural Women Who Experienced Adolescent Dating Abuse: A Mixed Methods Study. J Interpers Violence. 2016 Mar; 31(5):920-41. Burton CW, Halpern-Felsher B, Rehm RS, Rankin SH, Humphreys JC. PMID: 25392389.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    18. What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit? J Pediatr Nurs. 2015 Jan-Feb; 30(1):133-42. Baird J, Davies B, Hinds PS, Baggott C, Rehm RS. PMID: 25450441.
      View in: PubMed   Mentions: 5     Fields:    Translation:Humans
    19. Parental live liver donation: a transformational experience. Prog Transplant. 2014 Mar; 24(1):69-75. Nasr AS, Rehm RS. PMID: 24598568.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    20. "It was pretty scary": the theme of fear in young adult women's descriptions of a history of adolescent dating abuse. Issues Ment Health Nurs. 2013 Nov; 34(11):803-13. Burton CW, Halpern-Felsher B, Rehm RS, Rankin S, Humphreys JC. PMID: 24131412.
      View in: PubMed   Mentions: 1     Fields:    Translation:HumansPHPublic Health
    21. Parental advocacy styles for special education students during the transition to adulthood. Qual Health Res. 2013 Oct; 23(10):1377-87. Rehm RS, Fisher LT, Fuentes-Afflick E, Chesla CA. PMID: 24062419.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    22. Nursing's contribution to research about parenting children with complex chronic conditions: an integrative review, 2002 to 2012. Nurs Outlook. 2013 Sep-Oct; 61(5):266-90. Rehm RS. PMID: 23809600.
      View in: PubMed   Mentions: 8     Fields:    Translation:Humans
    23. Chronic conditions among children admitted to U.S. pediatric intensive care units: their prevalence and impact on risk for mortality and prolonged length of stay*. Crit Care Med. 2012 Jul; 40(7):2196-203. Edwards JD, Houtrow AJ, Vasilevskis EE, Rehm RS, Markovitz BP, Graham RJ, Dudley RA. PMID: 22564961.
      View in: PubMed   Mentions: 47     Fields:    Translation:Humans
    24. Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability. ANS Adv Nurs Sci. 2012 Jul-Sep; 35(3):E57-72. Rehm RS, Fuentes-Afflick E, Fisher LT, Chesla CA. PMID: 22869218.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    25. "No me ponían mucha importancia": care-seeking experiences of undocumented Mexican immigrant women with chronic illness. ANS Adv Nurs Sci. 2012 Apr-Jun; 35(2):E24-36. Chandler JT, Malone RE, Thompson LM, Rehm RS. PMID: 22565795.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    26. Profiling health and health-related services for children with special health care needs with and without disabilities. Acad Pediatr. 2011 Nov-Dec; 11(6):508-16. Houtrow AJ, Okumura MJ, Hilton JF, Rehm RS. PMID: 21962936.
      View in: PubMed   Mentions: 11     Fields:    Translation:Humans
    27. Working with culture: culturally appropriate mental health care for Asian Americans. J Adv Nurs. 2011 Nov; 67(11):2373-82. Park M, Chesla CA, Rehm RS, Chun KM. PMID: 21545638.
      View in: PubMed   Mentions: 2     Fields:    Translation:Humans
    28. Relationships and betrayal among young women: theoretical perspectives on adolescent dating abuse. J Adv Nurs. 2011 Jun; 67(6):1393-405. Burton CW, Halpern-Felsher B, Rankin SH, Rehm RS, Humphreys JC. PMID: 21261691.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    29. Identifying Health Disparities and Health Care Inequities Between Children With Special Health Care Needs With and Without Disabilities. PM&R. 2010 Sep 1; 2(9):s4. Amy J. Houtrow, Megumi J. Okumura, Roberta S. Rehm. .
      View in: Publisher Site   Mentions:
    30. Poster 298: Identifying Children With Disabilities Using the National Survey of Children With Special Health Care Needs. PM&R. 2010 Sep 1; 2(9):s133-s134. Amy J. Houtrow, Megumi J. Okumura, Roberta S. Rehm. .
      View in: Publisher Site   Mentions:
    31. Book Review: Wendy Votroubek and Aaron Tabacco (Eds.) Pediatric Home Care for Nurses: A Family-Centered Approach (3rd ed.) Boston, MA: Jones & Bartlett, 2010. Journal of Family Nursing. 2010 Aug 1; 16(3):344-346. Roberta S. Rehm. .
      View in: Publisher Site   Mentions:
    32. Resting heart rate does not predict growth in preterm infants. Early Hum Dev. 2010 Jan; 86(1):23-7. Ruth V, Kennedy C, Rehm R, Ariagno R, Lee KA. PMID: 20089373.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    33. Living-related donors' quest for information before donation. Prog Transplant. 2009 Mar; 19(1):53-8. Nasr AS, Rehm RS. PMID: 19341063.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    34. Living-Related Donors' Quest for Information before Donation. Progress in Transplantation. 2009 Mar 1; 19(1):53-58. Annette Sue Nasr, Roberta S. Rehm. .
      View in: Publisher Site   Mentions:
    35. Transition to Home From the Neonatal Intensive Care Unit. Journal of Pediatric Nursing. 2008 Apr 1; 23(2):e20-e21. Roberta S. Rehm, Robin Bisgaard. .
      View in: Publisher Site   Mentions:
    36. What we know (and do not know) about raising children with complex continuing care needs. J Child Health Care. 2008 Mar; 12(1):4-6. Carnevale FA, Rehm RS, Kirk S, McKeever P. PMID: 18287180.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    37. A life skills intervention improved psychosocial adjustment in children with cystic fibrosis. Evid Based Nurs. 2007 Apr; 10(2):47. Rehm RS. PMID: 17384099.
      View in: PubMed   Mentions: 1     Fields:    
    38. Social interactions at school of children who are medically fragile and developmentally delayed. J Pediatr Nurs. 2006 Aug; 21(4):299-307. Rehm RS, Bradley JF. PMID: 16843214.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    39. Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed. Qual Health Res. 2005 Jul; 15(6):807-20. Rehm RS, Bradley JF. PMID: 15961877.
      View in: PubMed   Mentions: 13     Fields:    Translation:Humans
    40. Mental health of undocumented Mexican immigrants: a review of the literature. ANS Adv Nurs Sci. 2005 Jul-Sep; 28(3):240-51. Sullivan MM, Rehm R. PMID: 16106153.
      View in: PubMed   Mentions: 40     Fields:    Translation:Humans
    41. The search for social safety and comfort in families raising children with complex chronic conditions. J Fam Nurs. 2005 Feb; 11(1):59-78. Rehm RS, Bradley JF. PMID: 16287818.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    42. Cultural intersections in the care of Mexican American children with chronic conditions. Pediatr Nurs. 2003 Nov-Dec; 29(6):434-9. Rehm RS. PMID: 14743838.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    43. Legal, financial, and ethical ambiguities for Mexican American families: caring for children with chronic conditions. Qual Health Res. 2003 May; 13(5):689-702. Rehm RS. PMID: 12756688.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    44. Parents', nurses', and educators' perceptions of risks and benefits of school attendance by children who are medically fragile/technology-dependent. J Pediatr Nurs. 2002 Oct; 17(5):345-53. Rehm RS, Rohr JA. PMID: 12395302.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    45. Creating a context of safety and achievement at school for children who are medically fragile/technology dependent. ANS Adv Nurs Sci. 2002 Mar; 24(3):71-84. Rehm RS. PMID: 11890196.
      View in: PubMed   Mentions: 2     Fields:    Translation:Humans
    46. Parental encouragement, protection, and advocacy for Mexican-American children with chronic conditions. Journal of Pediatric Nursing. 2000 Apr 1; 15(2):89-98. Roberta S. Rehm. .
      View in: Publisher Site   Mentions:
    47. "It's Just a Fact of Life": Family Members' Perceptions of Parental Chronic Illness. Journal of Family Nursing. 1998 Feb 1; 4(1):21-40. Roberta S. Rehm, Marci L. Catanzaro. .
      View in: Publisher Site   Mentions:
    Roberta's Networks
    Concepts (192)
    Derived automatically from this person's publications.
    _
    Co-Authors (27)
    People in Profiles who have published with this person.
    _
    Similar People (60)
    People who share similar concepts with this person.
    _
    Same Department
    Search Department
    _