Megie Okumura, MD, MAS

Title(s)Associate Professor, Pediatrics
SchoolSchool of Medicine
Address490 Illinois Street
San Francisco CA 94158
Phone415-502-8068
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    Collapse Biography 
    Collapse Education and Training
    New York Medical CollegeM.D.2000School of Medicine
    Yale-New Haven HospitalInternal Medicine and Pediatrics Combined Residency Program2004School of Medicine
    University of MichiganRobert Wood Johnson Clinical Scholars Program2006School of Medicine
    UCSFInstitute for Health Policy Studies Fellowship2008School of Medicine
    UCSFM.A.S2011Epidemiology and Biostatistics
    UCSF, San Francisco, CA6/2021Diversity, Equity, and Inclusion Champion Training

    Collapse Overview 
    Collapse Overview
    My research is aimed at studying and formulating interventions that will address barriers and facilitators to chronic illness care for children with special health care needs as they transition from the pediatric to adult health care setting. I am dual-board certified in general pediatrics and internal medicine, and therefore have a unique perspective on the health care issues affecting the entire age spectrum of patients with childhood-onset chronic illnesses. My research and professional goal is to improve health care quality for youth and young adults with chronic conditions as they transition from pediatric to adult health care. Ultimately, I intend to apply my research to chronic illness care across the lifespan.

    My current research program focuses on studies that will inform ways to improve the quality of health care among adolescents and young adults with chronic conditions. In order to best design programs that can help these YSHCN, my research has focused on epidemiologic studies of health care utilization and health care needs. My work has focused on interventions that will assist YSHCN transition from pediatric to adult health care. I have focused my interventions within the primary care setting as well as in subspecialty care (Cystic Fibrosis and Diabetes). Additionally, I work with community partners around the Bay Area to help develop mechanisms to improve the care of persons with disabilities in the community.

    Collapse Research 
    Collapse Research Activities and Funding
    Resilience in Action: Building Resilience and Appropriate Independence in Young Adults with Autism
    NIH R21MH115375Sep 1, 2018 - Jun 30, 2020
    Role: Principal Investigator
    Barriers &Facilitators to Health Care: Transitioning Youth with Special Needs
    NIH K08HS017716Sep 30, 2008 - Sep 29, 2013
    Role: Principal Investigator

    Collapse Bibliographic 
    Collapse Publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Researchers can login to make corrections and additions, or contact us for help. to make corrections and additions.
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    Altmetrics Details PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
    1. The Transition Journey: Time to Systematically Address Transition Planning to Adult Health Care. Pediatrics. 2018 10; 142(4). Okumura MJ. PMID: 30224364.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    2. Caring for Children with Special Health Care Needs: Profiling Pediatricians and Their Health Care Resources. Matern Child Health J. 2018 07; 22(7):1042-1050. Okumura MJ, Knauer HA, Calvin KE, Takayama JI. PMID: 29497983.
      View in: PubMed   Mentions: 2     Fields:    Translation:Humans
    3. Pediatricians' Comfort Level in Caring for Children With Special Health Care Needs. Acad Pediatr. 2017 08; 17(6):678-686. Okumura MJ, Knauer HA, Calvin KE, Takayama JI. PMID: 28246025.
      View in: PubMed   Mentions: 4     Fields:    Translation:Humans
    4. Profiling Interfacility Transfers for Hospitalized Pediatric Patients. Hosp Pediatr. 2016 Jun; 6(6):345-53. Rosenthal JL, Hilton JF, Teufel RJ, Romano PS, Kaiser SV, Okumura MJ. PMID: 27150111.
      View in: PubMed   Mentions: 7     Fields:    Translation:Humans
    5. Interfacility Transfers to General Pediatric Floors: A Qualitative Study Exploring the Role of Communication. Acad Pediatr. 2016 Sep-Oct; 16(7):692-9. Rosenthal JL, Okumura MJ, Hernandez L, Li ST, Rehm RS. PMID: 27109492.
      View in: PubMed   Mentions: 7     Fields:    Translation:Humans
    6. Cystic Fibrosis Transitions of Care: Lessons Learned and Future Directions for Cystic Fibrosis. Clin Chest Med. 2016 Mar; 37(1):119-26. Okumura MJ, Kleinhenz ME. PMID: 26857773.
      View in: PubMed   Mentions: 5     Fields:    Translation:Humans
    7. Medical Homes for Children With Special Health Care Needs: Primary Care or Subspecialty Service? Acad Pediatr. 2016 May-Jun; 16(4):366-72. Van Cleave J, Okumura MJ, Swigonski N, O'Connor KG, Mann M, Lail JL. PMID: 26523634.
      View in: PubMed   Mentions: 7     Fields:    Translation:Humans
    8. Development of the Children With Disabilities Algorithm. Pediatrics. 2015 Oct; 136(4):e871-8. Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Houtrow AJ, Kuo DZ, Okumura MJ, Van Cleave JM, Johnson CK, Mahoney LL, Martin J, Landrum MB, Schuster MA. PMID: 26416938.
      View in: PubMed   Mentions: 2     Fields:    Translation:Humans
    9. Risk Factors for Prolonged Length of Stay or Complications During Pediatric Respiratory Hospitalizations. Hosp Pediatr. 2015 Sep; 5(9):461-73. Kaiser SV, Bakel LA, Okumura MJ, Auerbach AD, Rosenthal J, Cabana MD. PMID: 26330245.
      View in: PubMed   Mentions: 5     Fields:    Translation:Humans
    10. The Role of Health Advocacy in Transitions from Pediatric to Adult Care for Children with Special Health Care Needs: Bridging Families, Provider and Community Services. J Pediatr Nurs. 2015 Sep-Oct; 30(5):714-23. Okumura MJ, Saunders M, Rehm RS. PMID: 26228309.
      View in: PubMed   Mentions: 4     Fields:    Translation:Humans
    11. Health care transition preparation in youth with chronic conditions: working towards translational evidence with a patient perspective. J Pediatr Rehabil Med. 2015; 8(1):31-7. Ferris ME, Ferris MT, Okumura MJ, Cohen SE, Hooper SR. PMID: 25737346.
      View in: PubMed   Mentions: 4     Fields:    Translation:Humans
    12. Adults with childhood-onset chronic conditions admitted to US pediatric and adult intensive care units. J Crit Care. 2015 Feb; 30(1):201-6. Edwards JD, Vasilevskis EE, Yoo EJ, Houtrow AJ, Boscardin WJ, Dudley RA, Okumura MJ. PMID: 25466316.
      View in: PubMed   Mentions: 2     Fields:    Translation:Humans
    13. Neighborhood Characteristics and ADHD: Results of a National Study. J Atten Disord. 2015 Sep; 19(9):731-40. Razani N, Hilton JF, Halpern-Felsher BL, Okumura MJ, Morrell HE, Yen IH. PMID: 25028386.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    14. Educational and vocational outcomes of adults with childhood- and adult-onset systemic lupus erythematosus: nine years of followup. Arthritis Care Res (Hoboken). 2014 May; 66(5):717-24. Lawson EF, Hersh AO, Trupin L, von Scheven E, Okumura MJ, Yazdany J, Yelin EH. PMID: 24877200.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    15. Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation. BMJ Qual Saf. 2014 Apr; 23 Suppl 1:i64-i72. Okumura MJ, Ong T, Dawson D, Nielson D, Lewis N, Richards M, Brindis CD, Kleinhenz ME. PMID: 24415776.
      View in: PubMed   Mentions: 11     Fields:    Translation:Humans
    16. The health care transition research consortium health care transition model: a framework for research and practice. J Pediatr Rehabil Med. 2014; 7(1):3-15. Betz CL, Ferris ME, Woodward JF, Okumura MJ, Jan S, Wood DL. PMID: 24919934.
      View in: PubMed   Mentions: 7     Fields:    Translation:Humans
    17. Multi-institutional profile of adults admitted to pediatric intensive care units. JAMA Pediatr. 2013 May; 167(5):436-43. Edwards JD, Houtrow AJ, Vasilevskis EE, Dudley RA, Okumura MJ. PMID: 23549637.
      View in: PubMed   Mentions: 8     Fields:    Translation:Humans
    18. Inpatient care for children, ages 1-20 years, with spina bifida in the United States. J Pediatr Rehabil Med. 2013; 6(2):95-101. Houtrow AJ, Maselli JH, Okumura MJ. PMID: 23803342.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    19. Change in health status and access to care in young adults with special health care needs: results from the 2007 national survey of adult transition and health. J Adolesc Health. 2013 Apr; 52(4):413-8. Okumura MJ, Hersh AO, Hilton JF, Lotstein DS. PMID: 23298998.
      View in: PubMed   Mentions: 16     Fields:    Translation:Humans
    20. Peripheral muscle weakness in RASopathies. Muscle Nerve. 2012 Sep; 46(3):394-9. Stevenson DA, Allen S, Tidyman WE, Carey JC, Viskochil DH, Stevens A, Hanson H, Sheng X, Thompson BA, Okumura MJ, Reinker K, Johnson B, Rauen KA. PMID: 22907230.
      View in: PubMed   Mentions: 13     Fields:    Translation:HumansCells
    21. Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey. Pediatr Rheumatol Online J. 2011 Dec 06; 9(1):35. Lawson EF, Hersh AO, Applebaum MA, Yelin EH, Okumura MJ, von Scheven E. PMID: 22145642.
      View in: PubMed   Mentions: 20     Fields:    
    22. Profiling health and health-related services for children with special health care needs with and without disabilities. Acad Pediatr. 2011 Nov-Dec; 11(6):508-16. Houtrow AJ, Okumura MJ, Hilton JF, Rehm RS. PMID: 21962936.
      View in: PubMed   Mentions: 11     Fields:    Translation:Humans
    23. PEDIATRIC MENTAL HEALTH PROBLEMS AND ASSOCIATED BURDEN ON FAMILIES. Vulnerable Child Youth Stud. 2011 Sep; 6(3):222-233. Houtrow AJ, Okumura MJ. PMID: 22135697.
      View in: PubMed   Mentions:
    24. Physician views on barriers to primary care for young adults with childhood-onset chronic disease. Pediatrics. 2010 Apr; 125(4):e748-54. Okumura MJ, Kerr EA, Cabana MD, Davis MM, Demonner S, Heisler M. PMID: 20231189.
      View in: PubMed   Mentions: 18     Fields:    Translation:Humans
    25. Growing up and getting old(er) with childhood-onset chronic diseases: paving the way to better chronic illness care worldwide. J Adolesc Health. 2009 Dec; 45(6):541-2. Okumura MJ. PMID: 19931824.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    26. Understanding factors associated with work loss for families caring for CSHCN. Pediatrics. 2009 Dec; 124 Suppl 4:S392-8. Okumura MJ, Van Cleave J, Gnanasekaran S, Houtrow A. PMID: 19948604.
      View in: PubMed   Mentions: 21     Fields:    Translation:Humans
    27. Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood. J Gen Intern Med. 2008 Oct; 23(10):1621-7. Okumura MJ, Heisler M, Davis MM, Cabana MD, Demonner S, Kerr EA. PMID: 18661191.
      View in: PubMed   Mentions: 34     Fields:    Translation:Humans
    28. Trends in hospitalizations for diabetes among children and young adults: United States, 1993 2004. Diabetes Care. 2007 Dec; 30(12):3035-9. Lee JM, Okumura MJ, Freed GL, Menon RK, Davis MM. PMID: 17728482.
      View in: PubMed   Mentions: 16     Fields:    Translation:Humans
    29. State and national estimates of insurance coverage and health care utilization for adolescents with chronic conditions from the National Survey of Children's Health, 2003. J Adolesc Health. 2007 Oct; 41(4):343-9. Okumura MJ, McPheeters ML, Davis MM. PMID: 17875459.
      View in: PubMed   Mentions: 9     Fields:    Translation:Humans
    30. The results of a randomized controlled trial to evaluate the effect of Lactobacillus rhamnosus. J Hum Nutr Diet. 2006 Dec; 19(6):451; author reply 452. Okumura MJ, Cabana MD. PMID: 17105543.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    31. Prevalence and determinants of insulin resistance among U.S. adolescents: a population-based study. Diabetes Care. 2006 Nov; 29(11):2427-32. Lee JM, Okumura MJ, Davis MM, Herman WH, Gurney JG. PMID: 17065679.
      View in: PubMed   Mentions: 151     Fields:    Translation:Humans
    32. Inpatient health care use among adult survivors of chronic childhood illnesses in the United States. Arch Pediatr Adolesc Med. 2006 Oct; 160(10):1054-60. Okumura MJ, Campbell AD, Nasr SZ, Davis MM. PMID: 17018465.
      View in: PubMed   Mentions: 12     Fields:    Translation:Humans
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