Sign in to edit your profile (add interests, mentoring, photo, etc.)

    Megie Okumura, MD, MAS

    TitleAssistant Professor
    SchoolUCSF School of Medicine
    DepartmentPediatrics
    Address3333 Calif. St,Laurel Heights
    San Francisco CA 94143
    Phone415-502-8068

       Biography 
       Education and Training
      Institution Degree School or Department Year
      New YorkM.D.School of Medicine2000

       Overview 
       Overview
      My research is aimed at studying and formulating interventions that will address barriers and facilitators to chronic illness care for children with special health care needs as they transition from the pediatric to adult health care setting. I am dual-board certified in general pediatrics and internal medicine, and therefore have a unique perspective on the health care issues affecting the entire age spectrum of patients with childhood-onset chronic illnesses. My research and professional goal is to improve health care quality for youth and young adults with chronic conditions as they transition from pediatric to adult health care. Ultimately, I intend to apply my research to chronic illness care across the lifespan.

      My current research program focuses on studies that will inform ways to improve the quality of health care among adolescents and young adults with chronic conditions. Diseases that affect children and young adults have a wide spectrum of process and severity. I am interested in identifying how best to create health care delivery systems and organizational practices that are adaptable to the needs of individuals who have a heterogeneous group of chronic diseases. Despite the variation in disease specific treatments, most children and young adults with medically complex conditions require similar general chronic health care management. For example, cystic fibrosis, which affects largely the lung and endocrine systems, and sickle cell disease, which affects the hematologic system require very different treatment regimens. Yet both of these diseases require care coordination across numerous specialists, require nutrition support, and require an organized continuous health care delivery system to ensure high quality care. Individually, these types of severe childhood disease may be rare, but in aggregate they make up a significant proportion of the chronically ill in children and young adults. Therefore, focusing on improving quality for a single disease process is insufficient to address the chronic illness care needs of children and young adults. As children, these individuals are categorized as children with special health care needs (CSHCN). CSHCN are defined by the Maternal and Child Health Bureau as “those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.” Eventually, these children will age out of pediatric health services. I will refer to this heterogeneous group as youth and young adults with special health care needs (YSHCN).

      In order to best design programs that can help these YSHCN, my research has focused on epidemiologic studies of health care utilization and health care needs. I have utilized large secondary datasets such as the Kid Inpatient Dataset, the National Survey of Children’s Health as well as the National Survey of Children with Special Health Care Needs. I have also performed primary data collection through a survey that investigated physician comfort in treating YSHCN. I have received a grant by the Academic Pediatric Association to perform a qualitative study to investigate barriers and facilitators that patient’s face as the transition from pediatric based health care in to the adult health care setting. This prior work has led to my career development award funded by AHRQ. My career development award focuses on studying barriers and facilitators to chronic illness management during the transitioning period for YSHCN. Using the findings, my goal is to design interventions that will improve chronic illness management and continuity of care for YSHCN. For example, I am evaluating the implementation of a health advocacy program targeted to improving care for transition aged adolescents and adults with developmental disabilities through a community-agency partnership. I am planning a future R-01 that would integrate community-based programming with health clinics to improve chronic disease management to YSHCN. Through my studies, my ultimate goal is to form evidence based strategies to improve chronic illness delivery to YSHCN.

       Interests
      Implementation Science, Children/youth, Persons with physical disability, Children with Special Health Care Needs, Adolescents and young adults, Clinic, Community-based organization, Health coaches, Education, Diabetes, Cystic Fibrosis, Developmental Disabilities, Children with Special Health Care Needs, Pediatric to Adult Health Care Transitions, Mentoring junior faculty or trainees, Interdisciplinary research collaboration, Implementation & dissemination science listservs, quality of care delivery for children with chronic diseases, transition from pediatric to adult care, community based participatory research quality of care, survey methods, secondary data analyses, qualitative methodology, implementation and dissemination sciences

       ORNG Applications 
       Websites
       Awarded Grants

       Bibliographic 
       Publications
      Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Researchers can login to make corrections and additions, or contact us for help.
      List All   |   Timeline
      1. Lawson EF, Hersh AO, Trupin L, von Scheven E, Okumura MJ, Yazdany J, Yelin EH. Educational and vocational outcomes of adults with childhood- and adult-onset systemic lupus erythematosus: nine years of followup. Arthritis Care Res (Hoboken). 2014 May; 66(5):717-24.
        View in: PubMed
      2. Okumura MJ, Ong T, Dawson D, Nielson D, Lewis N, Richards M, Brindis CD, Kleinhenz ME. Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation. BMJ Qual Saf. 2014 Apr; 23 Suppl 1:i64-i72.
        View in: PubMed
      3. Edwards JD, Houtrow AJ, Vasilevskis EE, Dudley RA, Okumura MJ. Multi-institutional profile of adults admitted to pediatric intensive care units. JAMA Pediatr. 2013 May; 167(5):436-43.
        View in: PubMed
      4. Houtrow AJ, Maselli JH, Okumura MJ. Inpatient care for children, ages 1-20 years, with spina bifida in the United States. J Pediatr Rehabil Med. 2013 Jan 1; 6(2):95-101.
        View in: PubMed
      5. Okumura MJ, Hersh AO, Hilton JF, Lotstein DS. Change in health status and access to care in young adults with special health care needs: results from the 2007 national survey of adult transition and health. J Adolesc Health. 2013 Apr; 52(4):413-8.
        View in: PubMed
      6. Stevenson DA, Allen S, Tidyman WE, Carey JC, Viskochil DH, Stevens A, Hanson H, Sheng X, Thompson BA, Okumura MJ, Reinker K, Johnson B, Rauen KA. Peripheral muscle weakness in RASopathies. Muscle Nerve. 2012 Sep; 46(3):394-9.
        View in: PubMed
      7. Lawson EF, Hersh AO, Applebaum MA, Yelin EH, Okumura MJ, von Scheven E. Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey. Pediatr Rheumatol Online J. 2011; 9(1):35.
        View in: PubMed
      8. Houtrow AJ, Okumura MJ, Hilton JF, Rehm RS. Profiling health and health-related services for children with special health care needs with and without disabilities. Acad Pediatr. 2011 Nov-Dec; 11(6):508-16.
        View in: PubMed
      9. Okumura MJ, Kerr EA, Cabana MD, Davis MM, Demonner S, Heisler M. Physician views on barriers to primary care for young adults with childhood-onset chronic disease. Pediatrics. 2010 Apr; 125(4):e748-54.
        View in: PubMed
      10. Okumura MJ. Growing up and getting old(er) with childhood-onset chronic diseases: paving the way to better chronic illness care worldwide. J Adolesc Health. 2009 Dec; 45(6):541-2.
        View in: PubMed
      11. Okumura MJ, Van Cleave J, Gnanasekaran S, Houtrow A. Understanding factors associated with work loss for families caring for CSHCN. Pediatrics. 2009 Dec; 124 Suppl 4:S392-8.
        View in: PubMed
      12. Okumura MJ, Heisler M, Davis MM, Cabana MD, Demonner S, Kerr EA. Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood. J Gen Intern Med. 2008 Oct; 23(10):1621-7.
        View in: PubMed
      13. Lee JM, Okumura MJ, Freed GL, Menon RK, Davis MM. Trends in hospitalizations for diabetes among children and young adults: United States, 1993 2004. Diabetes Care. 2007 Dec; 30(12):3035-9.
        View in: PubMed
      14. Okumura MJ, McPheeters ML, Davis MM. State and national estimates of insurance coverage and health care utilization for adolescents with chronic conditions from the National Survey of Children's Health, 2003. J Adolesc Health. 2007 Oct; 41(4):343-9.
        View in: PubMed
      15. Okumura MJ, Cabana MD. The results of a randomized controlled trial to evaluate the effect of Lactobacillus rhamnosus. J Hum Nutr Diet. 2006 Dec; 19(6):451; author reply 452.
        View in: PubMed
      16. Lee JM, Okumura MJ, Davis MM, Herman WH, Gurney JG. Prevalence and determinants of insulin resistance among U.S. adolescents: a population-based study. Diabetes Care. 2006 Nov; 29(11):2427-32.
        View in: PubMed
      17. Okumura MJ, Campbell AD, Nasr SZ, Davis MM. Inpatient health care use among adult survivors of chronic childhood illnesses in the United States. Arch Pediatr Adolesc Med. 2006 Oct; 160(10):1054-60.
        View in: PubMed
      Megie's Networks
      Related Concepts
      Derived automatically from this person's publications.
      _
      Co-Authors
      People in Profiles who have published with this person.
      _
      Related Authors
      People who share related concepts with this person.
      _
      Back to TOP