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Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease. JAMA Netw Open. 2023 May 01; 6(5):e2314070.
Harris KM, Preiss L, Varughese T, Bauer A, Calhoun CL, Treadwell M, Masese R, Hankins JS, Hussain FA, Glassberg J, Melvin CL, Gibson R, King AA, Sickle Cell Disease Implementation Consortium. PMID: 37200033; PMCID: PMC10196879.
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PubMed Mentions:
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CureSCi Metadata Catalog-Making sickle cell studies findable. PLoS One. 2022; 17(12):e0256248.
Pan H, Ives C, Mandal M, Qin Y, Hendershot T, Popovic J, Brambilla D, Stratford J, Treadwell M, Wu X, Kroner B. PMID: 36508412.
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PubMed Mentions: Fields:
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Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry. BMC Med Ethics. 2022 Dec 08; 23(1):130.
Munung NS, Nembaware V, Osei-Tutu L, Treadwell M, Chide OE, Bukini D, Tutuba H, SickleInAfrica ELSI WG, Wonkam A. PMID: 36482457.
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PubMed Mentions: Fields:
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Quality of Life in Sickle Cell Disease: What Matters. Hematol Oncol Clin North Am. 2022 Dec; 36(6):1137-1149.
Treadwell MJ, Anie KA. PMID: 36400535.
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PubMed Mentions: Fields:
Translation:
Humans
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What does it mean to be affiliated with care?: Delphi consensus on the definition of "unaffiliation" and "specialist" in sickle cell disease. PLoS One. 2022; 17(11):e0272204.
Lamont AE, Hsu LL, Jacobs S, Gibson R, Treadwell M, Chen Y, Lottenberg R, Axelrod K, Varughese T, Melvin C, Smith S, Chukwudozie IB, Kanter J, Sickle Cell Disease Implementation Consortium. PMID: 36367870; PMCID: PMC9651581.
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PubMed Mentions: Fields:
Translation:
Humans
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Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative. Front Genet. 2022; 13:921432.
Treadwell MJ, Du L, Bhasin N, Marsh AM, Wun T, Bender MA, Wong TE, Crook N, Chung JH, Norman S, Camilo N, Cavazos J, Nugent D. PMID: 36092883; PMCID: PMC9461276.
View in:
PubMed Mentions:
2
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Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals. J Pediatr Hematol Oncol. 2022 10 01; 44(7):e999-e1005.
Shah NR, Treadwell MJ, Vichinsky E. PMID: 35700397.
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PubMed Mentions: Fields:
Translation:
Humans
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An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model. Qual Life Res. 2022 Sep; 31(9):2681-2694.
Treadwell MJ, Mushiana S, Badawy SM, Preiss L, King AA, Kroner B, Chen Y, Glassberg J, Gordeuk V, Shah N, Snyder A, Wun T, Sickle Cell Disease Implementation Consortium (SCDIC). PMID: 35445915; PMCID: PMC9356962.
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PubMed Mentions: Fields:
Translation:
Humans
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Perspectives of individuals with sickle cell disease on barriers to care. PLoS One. 2022; 17(3):e0265342.
Phillips S, Chen Y, Masese R, Noisette L, Jordan K, Jacobs S, Hsu LL, Melvin CL, Treadwell M, Shah N, Tanabe P, Kanter J. PMID: 35320302; PMCID: PMC8942270.
View in:
PubMed Mentions:
3 Fields:
Translation:
Humans
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Pregnancy outcomes with hydroxyurea use in women with sickle cell disease. Am J Hematol. 2022 05; 97(5):603-612.
Kroner BL, Hankins JS, Pugh N, Kutlar A, King AA, Shah NR, Kanter J, Glassberg J, Treadwell M, Gordeuk VR, Sickle Cell Disease Implementation Consortium. PMID: 35142007; PMCID: PMC8986611.
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PubMed Mentions:
4 Fields:
Translation:
Humans
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Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA. BMJ Open. 2021 11 17; 11(11):e050880.
Smeltzer MP, Howell KE, Treadwell M, Preiss L, King AA, Glassberg JA, Tanabe P, Badawy SM, DiMartino L, Gibson R, Kanter J, Klesges LM, Hankins JS, Sickle Cell Disease Implementation Consortium. PMID: 34789492; PMCID: PMC8601067.
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PubMed Mentions:
5 Fields:
Translation:
Humans
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Early Evaluation of the Use of Crizanlizumab in Sickle Cell Disease: A National Alliance of Sickle Cell Centers Study. Blood. 2021 Nov 5; 138(Supplement 1):3113-3113.
Kanter KJ, Hellemann HG, Cohen CA, Manwani MD, Idowu IM, Guarino GS, Saif Ur Rehman SS, Treadwell TM, Clay CE, Owusu-Ansah OA, Little LJ, Desai DP, Madisetti MM, Lanzkron LS. .
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Publisher Site Mentions:
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Improving Completion Rates of Transcranial Doppler Ultrasounds in Children with Sickle Cell Disease Using Quality Improvement Efforts: In-Clinic Vs. Population-Based Assessments. Blood. 2021 Nov 5; 138(Supplement 1):1886-1886.
Vissa VM, Treadwell TM, Bardach BN. .
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Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium. PLoS One. 2021; 16(10):e0258638.
Masese RV, Bulgin D, Knisely MR, Preiss L, Stevenson E, Hankins JS, Treadwell MJ, King AA, Gordeuk VR, Kanter J, Gibson R, Glassberg JA, Tanabe P, Shah N, Sickle Cell Disease Implementation Consortium. PMID: 34714833; PMCID: PMC8555833.
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PubMed Mentions:
1 Fields:
Translation:
Humans
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Patient-reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease. Am J Hematol. 2021 11 01; 96(11):1396-1406.
Longoria JN, Pugh NL, Gordeuk V, Hsu LL, Treadwell M, King AA, Gibson R, Kayle M, Crego N, Glassberg J, Melvin CL, Hankins JS, Porter J. PMID: 34350622; PMCID: PMC8855994.
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PubMed Mentions:
6 Fields:
Translation:
Humans
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Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial. JMIR Res Protoc. 2021 May 21; 10(5):e27650.
Hood AM, Strong H, Nwankwo C, Johnson Y, Peugh J, Mara CA, Shook LM, Brinkman WB, Real FJ, Klein MD, Hackworth R, Badawy SM, Thompson AA, Raphael JL, Yates AM, Smith-Whitley K, King AA, Calhoun C, Creary SE, Piccone CM, Hildenbrand AK, Reader SK, Neumayr L, Meier ER, Sobota AE, Rana S, Britto M, Saving KL, Treadwell M, Quinn CT, Ware RE, Crosby LE. PMID: 34018965; PMCID: PMC8178738.
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PubMed Mentions:
4
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Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study. JMIR Res Protoc. 2021 Apr 16; 10(4):e24818.
Luo L, King AA, Carroll Y, Baumann AA, Brambilla D, Carpenter CR, Colla J, Gibson RW, Gollan S, Hall G, Klesges L, Kutlar A, Lyon M, Melvin CL, Norell S, Mueller M, Potter MB, Richesson R, Richardson LD, Ryan G, Siewny L, Treadwell M, Zun L, Armstrong-Brown J, Cox L, Tanabe P. PMID: 33861209; PMCID: PMC8087964.
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PubMed Mentions:
1
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Improving Preventive Care for Children With Sickle Cell Anemia: A Quality Improvement Initiative. Pediatr Qual Saf. 2021 Jan-Feb; 6(1):e379.
Cabana MD, Marsh A, Treadwell MJ, Stemmler P, Rowland M, Bender MA, Bhasin N, Chung JH, Hassell K, Abdul Rashid NFN, Wong TE, Bardach NS. PMID: 33409431; PMCID: PMC7781296.
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PubMed Mentions:
1
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Association between hospital admissions and healthcare provider communication for individuals with sickle cell disease. Hematology. 2020 Dec; 25(1):229-240.
Cronin RM, Yang M, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson AA, Kalinyak K, DeBaun M, Treadwell M. PMID: 32552526; PMCID: PMC7440685.
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PubMed Mentions: Fields:
Translation:
Humans
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Predictors of Maternal Morbidity Among Participants Enrolled in the Sickle Cell Disease Implementation Consortium Registry. Blood. 2020 Nov 5; 136(Supplement 1):3-3.
Masese MR, Bulgin BD, Preiss PL, Knisely KM, Stevenson SE, Hankins HJ, Treadwell TM, King KA, Gordeuk GV, Kanter KJ, Gibson GR, Glassberg GJ, Tanabe TP, Shah SN. .
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Hydroxyurea Use and Outcomes of Pregnancy in Sickle Cell Disease. Blood. 2020 Nov 5; 136(Supplement 1):33-33.
Gordeuk GV, Kroner KB, Pugh PN, Hankins HJ, Kutlar KA, King KA, Shah SN, Kanter KJ, Glassberg GJ, Treadwell TM. .
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Sex Based Differences in Sickle Cell Disease. Blood. 2020 Nov 5; 136(Supplement 1):37-37.
Masese MR, Bulgin BD, Knisely KM, Preiss PL, Stevenson SE, Hankins HJ, Treadwell TM, King KA, Gordeuk GV, Kanter KJ, Gibson GR, Glassberg GJ, Tanabe TP, Shah SN. .
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Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study. Blood Adv. 2020 09 22; 4(18):4463-4473.
Hodges JR, Phillips SM, Norell S, Nwosu C, Khan H, Luo L, Badawy SM, King A, Tanabe P, Treadwell M, Rojas Smith L, Calhoun C, Hankins JS, Porter J. PMID: 32941646; PMCID: PMC7509876.
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PubMed Mentions:
11 Fields:
Translation:
Humans
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Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects. Blood Adv. 2020 08 25; 4(16):3804-3813.
Kanter J, Smith WR, Desai PC, Treadwell M, Andemariam B, Little J, Nugent D, Claster S, Manwani DG, Baker J, Strouse JJ, Osunkwo I, Stewart RW, King A, Shook LM, Roberts JD, Lanzkron S. PMID: 32785684; PMCID: PMC7448595.
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PubMed Mentions:
11 Fields:
Translation:
Humans
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Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study. JMIR Res Protoc. 2020 Jul 14; 9(7):e16319.
Hankins JS, Shah N, DiMartino L, Brambilla D, Fernandez ME, Gibson RW, Gordeuk VR, Lottenberg R, Kutlar A, Melvin C, Simon J, Wun T, Treadwell M, Calhoun C, Baumann A, Potter MB, Klesges L, Bosworth H, Sickle Cell Disease Implementation Consortium. PMID: 32442144; PMCID: PMC7388044.
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PubMed Mentions:
8
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A National Measurement Framework to Assess and Improve Sickle Cell Care in 4 US Regions. Public Health Rep. 2020 Jul/Aug; 135(4):442-451.
Faro EZ, Shook L, Treadwell MJ, King AA, Whiteman LN, Ivy ED, Hulihan M, Kavanagh PL, Selk S, Oyeku S, Berns SD. PMID: 32639897; PMCID: PMC7383758.
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PubMed Mentions:
1 Fields:
Translation:
Humans
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Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium. Am J Hematol. 2020 09; 95(9):1066-1074.
Knisely MR, Pugh N, Kroner B, Masese R, Gordeuk V, King AA, Smith SM, Gurney JG, Adams R, Wun T, Snyder A, Glassberg J, Shah N, Treadwell M, Sickle Cell Disease Implementation Consortium. PMID: 32449965; PMCID: PMC8141351.
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PubMed Mentions:
11 Fields:
Translation:
HumansCTClinical Trials
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Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care. JAMA Netw Open. 2020 05 01; 3(5):e206016.
Kanter J, Gibson R, Lawrence RH, Smeltzer MP, Pugh NL, Glassberg J, Masese RV, King AA, Calhoun C, Hankins JS, Treadwell M. PMID: 32469413; PMCID: PMC7260622.
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PubMed Mentions:
10 Fields:
Translation:
Humans
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Paediatric to adult transition care for patients with sickle cell disease: a global perspective. Lancet Haematol. 2020 Apr; 7(4):e329-e341.
Inusa BPD, Stewart CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M. PMID: 32220342.
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PubMed Mentions:
7 Fields:
Translation:
Humans
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Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease. Pediatr Blood Cancer. 2020 05; 67(5):e28152.
Kayle M, Valle J, Paulukonis S, Holl JL, Tanabe P, French DD, Garg R, Liem RI, Badawy SM, Treadwell MJ. PMID: 32147964; PMCID: PMC7096276.
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PubMed Mentions:
4 Fields:
Translation:
Humans
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Understanding sickle cell disease: impact of surveillance and gaps in knowledge. Blood Adv. 2020 02 11; 4(3):496-498.
Kaur M, Brown M, Love TW, Thompson A, Treadwell M, Smith-Whitley K. PMID: 32027743; PMCID: PMC7013264.
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PubMed Mentions:
1 Fields:
Translation:
Humans
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Chapter 8 Pediatric sickle cell disease. . 2020 Jan 1; 185-206.
Kidwell KK, Treadwell TM, Crosby CL. .
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Publisher Site Mentions:
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Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease. J Transcult Nurs. 2021 01; 32(1):21-29.
Clayton-Jones D, Matthie N, Treadwell M, Field JJ, Mager A, Sawdy R, George Dalmida S, Leonard C, Koch KL, Haglund K. PMID: 31889479.
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PubMed Mentions:
2 Fields:
Translation:
Humans
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Risk factors for hospitalizations and readmissions among individuals with sickle cell disease: results of a U.S. survey study. Hematology. 2019 Dec; 24(1):189-198.
Cronin RM, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson A, Kalinyak K, DeBaun M, Treadwell M. PMID: 30479187; PMCID: PMC6349225.
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PubMed Mentions:
18 Fields:
Translation:
HumansCTClinical Trials
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A Pilot Adult Sickle Cell Hematology Clinic in California's Inland Empire Improves Patient Outcome. Blood. 2019 Nov 13; 134(Supplement_1):3470-3470.
Chiruvolu CN, Patel PA, Rowley RC, Treadwell TM, Vichinsky VE, Pakbaz PZ. .
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Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations. Front Genet. 2019; 10:943.
Munung NS, Nembaware V, de Vries J, Bukini D, Tluway F, Treadwell M, Sangeda RZ, Mazandu G, Jonas M, Paintsil V, Nnodu OE, Balandya E, Makani J, Wonkam A. PMID: 31649726; PMCID: PMC6795756.
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PubMed Mentions:
6
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Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana. AJOB Empir Bioeth. 2019 Jul-Sep; 10(3):182-189.
Bukini D, deVries J, Treadwell M, Anie K, Dennis-Antwi J, Kamga KK, McCurdy S, Ohene-Frempong K, Makani J, Wonkam A. PMID: 31379268; PMCID: PMC7255821.
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PubMed Mentions:
3 Fields:
Translation:
Humans
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A STRATEGY FOR THE MEASUREMENT OF SICKLE CELL DISEASE SYMPTOMS FROM THE PATIENT PERSPECTIVE. HemaSphere. 2019 Jun 1; 3:320.
Ojo OF, Litcher-Kelly LL, Mazar MI, Klooster KB, Roeder RA, Chaston CE, Ollis OS, Treadwell TM, Reasner RD. .
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Barriers to Pediatric Sickle Cell Disease Guideline Recommendations. Glob Pediatr Health. 2019; 6:2333794X19847026.
Cabana MD, Kanter J, Marsh AM, Treadwell MJ, Rowland M, Stemmler P, Bardach NS. PMID: 31106244; PMCID: PMC6501475.
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PubMed Mentions:
11
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Lessons Learned from Building a Pediatric-to-Adult Sickle Cell Transition Program. South Med J. 2019 03; 112(3):190-197.
Smith WR, Sisler IY, Johnson S, Lipato TJ, Newlin JS, Owens ZS, Morgan AM, Treadwell MJ, Polak K. PMID: 30830235; PMCID: PMC6590675.
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PubMed Mentions:
6 Fields:
Translation:
Humans
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Development of a Hydroxyurea Decision Aid for Parents of Children With Sickle Cell Anemia. J Pediatr Hematol Oncol. 2019 01; 41(1):56-63.
Crosby LE, Walton A, Shook LM, Ware RE, Treadwell M, Saving KL, Britto M, Peugh J, McTate E, Oyeku S, Nwankwo C, Brinkman WB. PMID: 30044352; PMCID: PMC7359001.
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PubMed Mentions:
6 Fields:
Translation:
Humans
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Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials. Blood. 2018 Nov 29; 132(Supplement 1):3571-3571.
Ojo OF, Litcher-Kelly LL, Mazar MI, Klooster KB, Ollis OS, Chaston CE, Roeder RA, Treadwell TM, Reasner RD. .
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Pediatric residents' perceived barriers to opioid use in sickle cell disease pain management. Pediatr Blood Cancer. 2019 02; 66(2):e27535.
Fearon A, Marsh A, Kim J, Treadwell M. PMID: 30387290; PMCID: PMC6301127.
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PubMed Mentions:
4 Fields:
Translation:
Humans
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Virtual reality as complementary pain therapy in hospitalized patients with sickle cell disease. Pediatr Blood Cancer. 2019 02; 66(2):e27525.
Agrawal AK, Robertson S, Litwin L, Tringale E, Treadwell M, Hoppe C, Marsh A. PMID: 30362236.
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PubMed Mentions:
10 Fields:
Translation:
HumansCTClinical Trials
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The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease. Am J Hematol. 2018 12; 93(12):E391-E395.
DiMartino LD, Baumann AA, Hsu LL, Kanter J, Gordeuk VR, Glassberg J, Treadwell MJ, Melvin CL, Telfair J, Klesges LM, King A, Wun T, Shah N, Gibson RW, Hankins JS, Sickle Cell Disease Implementation Consortium. PMID: 30203558; PMCID: PMC6503654.
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PubMed Mentions:
31 Fields:
Translation:
Humans
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Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana. J Genet Couns. 2018 Sep 01.
Dennis-Antwi JA, Ohene-Frempong K, Anie KA, Dzikunu H, Agyare VA, Boadu RO, Antwi JS, Asafo MK, Anim-Boamah O, Asubonteng AK, Agyei S, Wonkam A, Treadwell MJ. PMID: 30171429; PMCID: PMC6395545.
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PubMed Mentions:
7 Fields:
-
Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease. Hematology. 2018 Oct; 23(9):683-691.
Cronin RM, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson AA, Kalinyak K, DeBaun MR, Treadwell M. PMID: 29595096.
View in:
PubMed Mentions:
10 Fields:
Translation:
HumansCTClinical Trials
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Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠. Health Qual Life Outcomes. 2017 Jun 02; 15(1):117.
Keller S, Yang M, Treadwell MJ, Hassell KL. PMID: 28577358; PMCID: PMC5455105.
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PubMed Mentions:
30 Fields:
Translation:
Humans
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Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study. OMICS A Journal of Integrative Biology. 2017 Jun 1; 21(6):323-332.
Treadwell TM, Makani MJ, Ohene-Frempong OK, Ofori-Acquah OS, McCurdy MS, de Vries dJ, Bukini BD, Dennis-Antwi DJ, Kamga KK, Mbekenga MC, Wonkam WE, Tangwa TG, Royal RC, Wonkam WA, as members of the H3Africa Consorti a. .
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Impact of Elosulfase Alfa on Pain in Patients with Morquio A Syndrome over 52 Weeks. Journal of Inborn Errors of Metabolism and Screening. 2017 Jan 1; 5:2326409817718850.
Treadwell TM, Harmatz HP, Burton BB, Mitchell MJ, Muschol MN, Jones JS, Pastores PG, Lau LH, Sparkes SR, Sutton SV, Meesen MB, Haller HC, Shaywitz SA, Gold GJ. .
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Publisher Site Mentions:
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Long-Term Pulmonary Function and Quality of Life in Children After Acute Respiratory Distress Syndrome: A Feasibility Investigation. Pediatr Crit Care Med. 2017 01; 18(1):e48-e55.
Ward SL, Turpin A, Spicer AC, Treadwell MJ, Church GD, Flori HR. PMID: 28060170; PMCID: PMC5221949.
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PubMed Mentions:
17 Fields:
Translation:
HumansCTClinical Trials
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Emergency department utilization by Californians with sickle cell disease, 2005-2014. Pediatr Blood Cancer. 2017 06; 64(6).
Paulukonis ST, Feuchtbaum LB, Coates TD, Neumayr LD, Treadwell MJ, Vichinsky EP, Hulihan MM. PMID: 28000344; PMCID: PMC5403550.
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PubMed Mentions:
20 Fields:
Translation:
Humans
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Mortality Among Women with Sickle Cell Disease Admitted for Delivery, California 2004-2014. Blood. 2016 Dec 2; 128(22):2332-2332.
Raider RF, Paulukonis PS, Hagar HW, Treadwell TM, Hulihan HM. .
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Self-efficacy and readiness for transition from pediatric to adult care in sickle cell disease. Int J Adolesc Med Health. 2016 Nov 01; 28(4):381-388.
Treadwell M, Johnson S, Sisler I, Bitsko M, Gildengorin G, Medina R, Barreda F, Major K, Telfair J, Smith WR. PMID: 26226116.
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PubMed Mentions:
10 Fields:
Translation:
Humans
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Impact of elosulfase alfa in patients with morquio A syndrome who have limited ambulation: An open-label, phase 2 study. Am J Med Genet A. 2017 Feb; 173(2):375-383.
Harmatz PR, Mengel E, Geberhiwot T, Muschol N, Hendriksz CJ, Burton BK, Jameson E, Berger KI, Jester A, Treadwell M, Sisic Z, Decker C. PMID: 27774754; PMCID: PMC5298029.
View in:
PubMed Mentions:
14 Fields:
Translation:
HumansCTClinical Trials
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278 Emergency Department Utilization by Californians With Sickle Cell Disease, 2005-2014. Annals of Emergency Medicine. 2016 Oct 1; 68(4):s108.
Paulukonis PS, Vichinsky VE, Neumayr NL, Treadwell TM, Coates CT, Feuchtbaum FL, Hulihan HM. .
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Barriers and facilitators to research participation among adults, and parents of children with sickle cell disease: A trans-regional survey. Am J Hematol. 2016 10; 91(10):E461-2.
Cronin RM, Hankins JS, Adams-Graves P, Thompson AA, Kalinyak K, Byrd J, McClain B, Kassim A, DeBaun M, Treadwell M. PMID: 27421796.
View in:
PubMed Mentions:
6 Fields:
Translation:
Humans
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Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care. Medicine (Baltimore). 2016 Aug; 95(35):e4528.
Evensen CT, Treadwell MJ, Keller S, Levine R, Hassell KL, Werner EM, Smith WR. PMID: 27583862; PMCID: PMC5008546.
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PubMed Mentions:
17 Fields:
Translation:
Humans
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Development of a sickle cell disease readiness for transition assessment. Int J Adolesc Med Health. 2016 May 01; 28(2):193-201.
Treadwell M, Johnson S, Sisler I, Bitsko M, Gildengorin G, Medina R, Barreda F, Major K, Telfair J, Smith WR. PMID: 26226115.
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PubMed Mentions:
10 Fields:
Translation:
Humans
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Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana. J Community Genet. 2016 Jul; 7(3):195-202.
Anie KA, Treadwell MJ, Grant AM, Dennis-Antwi JA, Asafo MK, Lamptey ME, Ojodu J, Yusuf C, Otaigbe A, Ohene-Frempong K. PMID: 27090687; PMCID: PMC4960026.
View in:
PubMed Mentions:
8
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Proceedings of a Sickle Cell Disease Ontology workshop - Towards the first comprehensive ontology for Sickle Cell Disease. Appl Transl Genom. 2016 Jun; 9:23-9.
Mulder N, Nembaware V, Adekile A, Anie KA, Inusa B, Brown B, Campbell A, Chinenere F, Chunda-Liyoka C, Derebail VK, Geard A, Ghedira K, Hamilton CM, Hanchard NA, Haendel M, Huggins W, Ibrahim M, Jupp S, Kamga KK, Knight-Madden J, Lopez-Sall P, Mbiyavanga M, Munube D, Nirenberg D, Nnodu O, Ofori-Acquah SF, Ohene-Frempong K, Opap KB, Panji S, Park M, Pule G, Royal C, Sangeda R, Tayo B, Treadwell M, Tshilolo L, Wonkam A. PMID: 27354937; PMCID: PMC4911424.
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PubMed Mentions:
10
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Global Challenges in Transition Care: One Program Models a Path for Young Adults with Sickle Cell Disease. Pediatrics. 2016 Feb 1; 137(Supplement 3):386a-386a.
Marino MJ, Treadwell TM, Major MK. .
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Publisher Site Mentions:
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Impact of elosulfase alfa in patients with Morquio syndrome type A who have limited ambulation: An open-label, phase 2 study. Molecular Genetics and Metabolism. 2016 Feb 1; 117(2):s55.
Harmatz HP, Jester JA, Mengel ME, Treadwell TM, Burton BB, Berger BK, Hendriksz HC, Geberhiwot GT, Sisic SZ, Decker DC. .
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Teaching About Genetics and Sickle Cell Disease In Fifth Grade. J Natl Med Assoc. 2015 Feb; 107(1):4-10.
Day LL, Murray E, Treadwell MJ, Lubin BH. PMID: 27282522.
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PubMed Mentions:
1 Fields:
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Safety and physiological effects of two different doses of elosulfase alfa in patients with morquio a syndrome: A randomized, double-blind, pilot study. Am J Med Genet A. 2015 Oct; 167A(10):2272-81.
Burton BK, Berger KI, Lewis GD, Tarnopolsky M, Treadwell M, Mitchell JJ, Muschol N, Jones SA, Sutton VR, Pastores GM, Lau H, Sparkes R, Genter F, Shaywitz AJ, Harmatz P. PMID: 26069231; PMCID: PMC4744659.
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18 Fields:
Translation:
Humans
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Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients. Cardiovasc J Afr. 2015 Mar-Apr; 26(2 Suppl 1):S50-5.
Wonkam A, Makani J, Ofori-Aquah S, Nnodu OE, Treadwell M, Royal C, Ohene-Frempong K, Members of the H3Africa Consortium. PMID: 25962948; PMCID: PMC4547555.
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PubMed Mentions:
7 Fields:
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Humans
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Impact of elosulfase alfa on pain in patients with Morquio syndrome type A. Molecular Genetics and Metabolism. 2015 Feb 1; 114(2):s51-s52.
Harmatz HP, Treadwell TM, Burton BB, Mitchell MJ, Muschol MN, Jones JS, Pastores PG, Lau LH, Sparkes SR, Sutton SV, Genter GF, Haller HC, Shaywitz SA. .
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Adult sickle cell quality-of-life measurement information system (ASCQ-Me): conceptual model based on review of the literature and formative research. Clin J Pain. 2014 Oct; 30(10):902-14.
Treadwell MJ, Hassell K, Levine R, Keller S. PMID: 24300219; PMCID: PMC4993284.
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44 Fields:
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Humans
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Using formative research to develop a counselor training program for newborn screening in Ghana. J Genet Couns. 2015 Apr; 24(2):267-77.
Treadwell MJ, Anie KA, Grant AM, Ofori-Acquah SF, Ohene-Frempong K. PMID: 25193810; PMCID: PMC4501216.
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PubMed Mentions:
8 Fields:
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HumansPHPublic Health
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Population based surveillance in sickle cell disease: methods, findings and implications from the California registry and surveillance system in hemoglobinopathies project (RuSH). Pediatr Blood Cancer. 2014 Dec; 61(12):2271-6.
Paulukonis ST, Harris WT, Coates TD, Neumayr L, Treadwell M, Vichinsky E, Feuchtbaum LB. PMID: 25176145.
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24 Fields:
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HumansPHPublic Health
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Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks. Health Qual Life Outcomes. 2014 Aug 22; 12:125.
Keller SD, Yang M, Treadwell MJ, Werner EM, Hassell KL. PMID: 25146160; PMCID: PMC4243820.
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PubMed Mentions:
45 Fields:
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HumansCTClinical Trials
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Research capacity. Enabling the genomic revolution in Africa. Science. 2014 Jun 20; 344(6190):1346-8.
H3Africa Consortium, Rotimi C, Abayomi A, Abimiku A, Adabayeri VM, Adebamowo C, Adebiyi E, Ademola AD, Adeyemo A, Adu D, Affolabi D, Agongo G, Ajayi S, Akarolo-Anthony S, Akinyemi R, Akpalu A, Alberts M, Alonso Betancourt O, Alzohairy AM, Ameni G, Amodu O, Anabwani G, Andersen K, Arogundade F, Arulogun O, Asogun D, Bakare R, Balde N, Baniecki ML, Beiswanger C, Benkahla A, Bethke L, Boehnke M, Boima V, Brandful J, Brooks AI, Brosius FC, Brown C, Bucheton B, Burke DT, Burnett BG, Carrington-Lawrence S, Carstens N, Chisi J, Christoffels A, Cooper R, Cordell H, Crowther N, Croxton T, de Vries J, Derr L, Donkor P, Doumbia S, Duncanson A, Ekem I, El Sayed A, Engel ME, Enyaru JC, Everett D, Fadlelmola FM, Fakunle E, Fischbeck KH, Fischer A, Folarin O, Gamieldien J, Garry RF, Gaseitsiwe S, Gbadegesin R, Ghansah A, Giovanni M, Goesbeck P, Gomez-Olive FX, Grant DS, Grewal R, Guyer M, Hanchard NA, Happi CT, Hazelhurst S, Hennig BJ, Hertz- C, Hide W, Hilderbrandt F, Hugo-Hamman C, Ibrahim ME, James R, Jaufeerally-Fakim Y, Jenkins C, Jentsch U, Jiang PP, Joloba M, Jongeneel V, Joubert F, Kader M, Kahn K, Kaleebu P, Kapiga SH, Kassim SK, Kasvosve I, Kayondo J, Keavney B, Kekitiinwa A, Khan SH, Kimmel P, King MC, Kleta R, Koffi M, Kopp J, Kretzler M, Kumuthini J, Kyobe S, Kyobutungi C, Lackland DT, Lacourciere KA, Landouré G, Lawlor R, Lehner T, Lesosky M, Levitt N, Littler K, Lombard Z, Loring JF, Lyantagaye S, Macleod A, Madden EB, Mahomva CR, Makani J, Mamven M, Marape M, Mardon G, Marshall P, Martin DP, Masiga D, Mason R, Mate-Kole M, Matovu E, Mayige M, Mayosi BM, Mbanya JC, McCurdy SA, McCarthy MI, McIlleron H, Mc'Ligeyo SO, Merle C, Mocumbi AO, Mondo C, Moran JV, Motala A, Moxey-Mims M, Mpoloka WS, Msefula CL, Mthiyane T, Mulder N, Mulugeta Gh, Mumba D, Musuku J, Nagdee M, Nash O, Ndiaye D, Nguyen AQ, Nicol M, Nkomazana O, Norris S, Nsangi B, Nyarko A, Nyirenda M, Obe E, Obiakor R, Oduro A, Ofori-Acquah SF, Ogah O, Ogendo S, Ohene-Frempong K, Ojo A, Olanrewaju T, Oli J, Osafo C, Ouwe Missi Oukem-Boyer O, Ovbiagele B, Owen A, Owolabi MO, Owolabi L, Owusu-Dabo E, Pare G, Parekh R, Patterton HG, Penno MB, Peterson J, Pieper R, Plange-Rhule J, Pollak M, Puzak J, Ramesar RS, Ramsay M, Rasooly R, Reddy S, Sabeti PC, Sagoe K, Salako T, Samassékou O, Sandhu MS, Sankoh O, Sarfo FS, Sarr M, Shaboodien G, Sidibe I, Simo G, Simuunza M, Smeeth L, Sobngwi E, Soodyall H, Sorgho H, Sow Bah O, Srinivasan S, Stein DJ, Susser ES, Swanepoel C, Tangwa G, Tareila A, Tastan Bishop O, Tayo B, Tiffin N, Tinto H, Tobin E, Tollman SM, Traoré M, Treadwell MJ, Troyer J, Tsimako-Johnstone M, Tukei V, Ulasi I, Ulenga N, van Rooyen B, Wachinou AP, Waddy SP, Wade A, Wayengera M, Whitworth J, Wideroff L, Winkler CA, Winnicki S, Wonkam A, Yewondwos M, sen T, Yozwiak N, Zar H. PMID: 24948725; PMCID: PMC4138491.
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198 Fields:
Translation:
Humans
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A Quality Improvement Initiative to Improve Emergency Department Care for Pediatric Patients with Sickle Cell Disease. J Clin Outcomes Manag. 2014 Feb; 21(2):62-70.
Treadwell MJ, Bell M, Leibovich SA, Barreda F, Marsh A, Gildengorin G, Morris CR. PMID: 26412961; PMCID: PMC4580258.
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1 Fields:
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Quality Improvement Goals for Sickle Cell Disease Pain Management in an Urban Pediatric Emergency Department: We Can Do Better!. Blood. 2012 Nov 16; 120(21):2101-2101.
Morris MC, Barreda BF, Leibovich LS, Rutherford RM, Saulys SA, Stewart SM, Lavrisha LL, Vichinsky VE, Bell BM, Treadwell TM. .
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A biopsychosocial-spiritual model of chronic pain in adults with sickle cell disease. Pain Manag Nurs. 2013 Dec; 14(4):287-301.
Taylor LEV, Stotts NA, Humphreys J, Treadwell MJ, Miaskowski C. PMID: 24315252; PMCID: PMC3857562.
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9 Fields:
Translation:
Humans
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Screening U.S. college athletes for their sickle cell disease carrier status. Am J Prev Med. 2011 Dec; 41(6 Suppl 4):S406-12.
Jordan LB, Smith-Whitley K, Treadwell MJ, Telfair J, Grant AM, Ohene-Frempong K. PMID: 22099365.
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PubMed Mentions:
9 Fields:
Translation:
HumansPHPublic Health
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Mental Health Symptoms, Quality of Life and Barriers to Accessing Health Care in Sickle Cell Disease. Blood. 2011 Nov 18; 118(21):337-337.
Treadwell TM, Barreda BF, Major MK, Walker WV, Payton PW, Kaur KK, Vichinsky VE. .
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Autonomic nervous system reactivity: children with and without sickle cell disease. Nurs Res. 2011 May-Jun; 60(3):197-207.
Treadwell MJ, Alkon A, Styles L, Boyce WT. PMID: 21532352; PMCID: PMC3130063.
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5 Fields:
Translation:
Humans
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The mediating effects of family functioning on psychosocial outcomes in healthy siblings of children with sickle cell disease. Pediatr Blood Cancer. 2011 Dec 01; 57(6):1055-61.
Gold JI, Treadwell M, Weissman L, Vichinsky E. PMID: 21360652.
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PubMed Mentions:
5 Fields:
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Humans
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Transition from pediatric to adult care in sickle cell disease: establishing evidence-based practice and directions for research. Am J Hematol. 2011 Jan; 86(1):116-20.
Treadwell M, Telfair J, Gibson RW, Johnson S, Osunkwo I. PMID: 21061308; PMCID: PMC5291694.
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39 Fields:
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Humans
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Chart Card: feasibility of a tool for improving emergency department care in sickle cell disease. J Natl Med Assoc. 2010 Nov; 102(11):1017-23.
Neumayr L, Pringle S, Giles S, Quirolo KC, Paulukonis S, Vichinsky EP, Treadwell MJ. PMID: 21141289; PMCID: PMC4950679.
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PubMed Mentions:
2 Fields:
Translation:
Humans
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Education and employment status of children and adults with thalassemia in North America. Pediatr Blood Cancer. 2010 Oct; 55(4):678-83.
Pakbaz Z, Treadwell M, Kim HY, Trachtenberg F, Parmar N, Kwiatkowski JL, Cunningham MJ, Martin M, Sweeters N, Neufeld EJ, Giardina PJ, Olivieri N, Yamashita RC, Vichinsky E. PMID: 20535817; PMCID: PMC2932798.
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1 Fields:
Translation:
Humans
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A review of the literature on the multiple dimensions of chronic pain in adults with sickle cell disease. J Pain Symptom Manage. 2010 Sep; 40(3):416-35.
Taylor LE, Stotts NA, Humphreys J, Treadwell MJ, Miaskowski C. PMID: 20656451; PMCID: PMC2989986.
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29 Fields:
Translation:
Humans
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Stress reactivity as a moderator of family stress, physical and mental health, and functional impairment for children with sickle cell disease. J Dev Behav Pediatr. 2010 Jul-Aug; 31(6):491-7.
Treadwell MJ, Alkon A, Quirolo KC, Boyce WT. PMID: 20585265; PMCID: PMC4593493.
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PubMed Mentions:
8 Fields:
Translation:
Humans
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Psychosocial and behavioral outcomes in children with sickle cell disease and their healthy siblings. J Behav Med. 2008 Dec; 31(6):506-16.
Gold JI, Mahrer NE, Treadwell M, Weissman L, Vichinsky E. PMID: 18784995.
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PubMed Mentions:
4 Fields:
Translation:
Humans
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Detection and assessment of stroke in patients with sickle cell disease: neuropsychological functioning and magnetic resonance imaging. Pediatr Hematol Oncol. 2008 Jun; 25(5):409-21.
Gold JI, Johnson CB, Treadwell MJ, Hans N, Vichinsky E. PMID: 18569843.
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PubMed Mentions:
18 Fields:
Translation:
Humans
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An expanded Transactional Stress and Coping Model for siblings of children with sickle cell disease: family functioning and sibling coping, self-efficacy and perceived social support. Child Care Health Dev. 2008 Jul; 34(4):491-502.
Gold JI, Treadwell M, Weissman L, Vichinsky E. PMID: 18485027.
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PubMed Mentions:
9 Fields:
Translation:
Humans
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Quantification of analgesic use in children with sickle cell disease. Clin J Pain. 2007 Jan; 23(1):8-14.
Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L. PMID: 17277639.
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PubMed Mentions:
10 Fields:
Translation:
Humans
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Sickle Cell Disease Health-Related Quality of Life Questionnaire Project. Blood. 2006 Nov 16; 108(11):3339-3339.
Werner WE, Treadwell TM, Hassell HK, Keller KS, Levine LR. .
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Using qualitative and quantitative strategies to evaluate knowledge and perceptions about sickle cell disease and sickle cell trait. J Natl Med Assoc. 2006 May; 98(5):704-10.
Treadwell MJ, McClough L, Vichinsky E. PMID: 16749645; PMCID: PMC2569269.
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PubMed Mentions:
31 Fields:
Translation:
Humans
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Changes in sleep, food intake, and activity levels during acute painful episodes in children with sickle cell disease. J Pediatr Nurs. 2006 Feb; 21(1):23-34.
Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L. PMID: 16428011.
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PubMed Mentions:
11 Fields:
Translation:
Humans
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Autonomic reactivity and clinical severity in children with sickle cell disease. Clin Auton Res. 2005 Dec; 15(6):400-7.
Pearson SR, Alkon A, Treadwell M, Wolff B, Quirolo K, Boyce WT. PMID: 16362543.
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28 Fields:
Translation:
Humans
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Quality of Life (QOL) in Sickle Cell Disease (SCD). Blood. 2005 Nov 16; 106(11):1324-1324.
Pakbaz PZ, Richards RL, Treadwell TM, Hackney-Stephens HE, Quirolo QK, Vichinsky VE. .
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Barriers to adherence of deferoxamine usage in sickle cell disease. Pediatr Blood Cancer. 2005 May; 44(5):500-7.
Treadwell MJ, Law AW, Sung J, Hackney-Stephens E, Quirolo K, Murray E, Glendenning GA, Vichinsky E. PMID: 15602707.
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PubMed Mentions:
18 Fields:
Translation:
Humans
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Trends in complete blood count values during acute painful episodes in children with sickle cell disease. J Pediatr Oncol Nurs. 2005 May-Jun; 22(3):152-9.
Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L. PMID: 15855476.
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Humans
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Are there phases to the vaso-occlusive painful episode in sickle cell disease? J Pain Symptom Manage. 2005 Apr; 29(4):392-400.
Jacob E, Beyer JE, Miaskowski C, Savedra M, Treadwell M, Styles L. PMID: 15857743.
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21 Fields:
Translation:
Humans
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A simple model to assess and improve adherence to iron chelation therapy with deferoxamine in patients with thalassemia. Ann N Y Acad Sci. 2005; 1054:486-91.
Pakbaz Z, Fischer R, Treadwell M, Yamashita R, Fung EB, Calvelli L, Quirolo K, Foote D, Harmatz P, Vichinsky EP. PMID: 16339703.
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PubMed Mentions:
6 Fields:
Translation:
Humans
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Quality of life in patients with thalassemia intermedia compared to thalassemia major. Ann N Y Acad Sci. 2005; 1054:457-61.
Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L, Singer T, Vichinsky EP. PMID: 16339697.
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PubMed Mentions:
33 Fields:
Translation:
Humans
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Barriers to Deferoxamine Adherence for Adults with Sickle Cell Disease. Blood. 2004 Nov 16; 104(11):3760-3760.
Treadwell TM, Sung SJ, Murray ME, Hagar HR, Major MK, Hackney-Stephens HE, Glendenning GA, Hoehner HC, Vichinsky VE. .
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Quality of Life in Patients with Thalassemia. Blood. 2004 Nov 16; 104(11):3786-3786.
Pakbaz PZ, Treadwell TM, Yamashita2 YR, Foote FD, Vichinsky VE. .
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Assessing Compliance to Iron Chelation Therapy in Patients with Thalassemia. Blood. 2004 Nov 16; 104(11):3787-3787.
Pakbaz PZ, Fischer FR, Gamino GR, Quirolo QK, Yamashita YR, Treadwell TM, Fung FE, Harmatz HP, Vichinsky VE. .
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Pain in children Are there phases to the vaso-occlusive episode in children with sickle cell disease. Journal of Pain. 2004 Apr 1; 5(3):s42.
Jacob JE, Miaskowski MC, Savedra SM, Beyer BJ, Treadwell TM, Styles SL. .
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Management of vaso-occlusive pain in children with sickle cell disease. J Pediatr Hematol Oncol. 2003 Apr; 25(4):307-11.
Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L. PMID: 12679645.
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PubMed Mentions:
10 Fields:
Translation:
Humans
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Changes in intensity, location, and quality of vaso-occlusive pain in children with sickle cell disease. Pain. 2003 Mar; 102(1-2):187-93.
Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L. PMID: 12620610.
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PubMed Mentions:
19 Fields:
Translation:
Humans
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Using quality improvement strategies to enhance pediatric pain assessment. Int J Qual Health Care. 2002 Feb; 14(1):39-47.
Treadwell MJ, Franck LS, Vichinsky E. PMID: 11871628.
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PubMed Mentions:
16 Fields:
Translation:
Humans
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Assessment of sickle cell pain in children and young adults using the adolescent pediatric pain tool. J Pain Symptom Manage. 2002 Feb; 23(2):114-20.
Franck LS, Treadwell M, Jacob E, Vichinsky E. PMID: 11844631.
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PubMed Mentions:
25 Fields:
Translation:
Humans
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Comparing Children with Sickle Cell Disease and Their Healthy Siblings on Measures of Coping, Self-Efficacy, Social Support, and Behavioral Problems,. Journal of Developmental and Behavioral Pediatrics. 1999 Oct 1; 20(5):401.
Gold GJ, Treadwell TM, Weissman WL, Vichinsky VE. .
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Practice guidelines for the assessment of children with sickle cell pain. J Soc Pediatr Nurs. 1999 Apr-Jun; 4(2):61-73.
Beyer JE, Platt AF, Kinney TR, Treadwell M. PMID: 10410355.
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2 Fields:
Translation:
Humans
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Approaches to working with adult thalassemia patients in pediatric settings. Ann N Y Acad Sci. 1998 Jun 30; 850:516-7.
Weissman L, Treadwell M, Foote D, Heer N, Vichinsky EP. PMID: 9668599.
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Humans
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#652 Evaluation of home desferal care in transfusion dependent children with thalassemia and sickle cell disease (SCD). Journal of Pediatric Hematology/Oncology. 1996 Nov 1; 18(4):454.
Weissman WL, Treadwell TM, Vichinsky VE. .
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