Simon Outram

Title(s)	Qualitative Researcher, Medicine
School	School of Medicine
Address	550 16th Street, #3151 San Francisco CA 94158
Phone	--
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Bibliographic

Publications

Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Researchers can login to make corrections and additions, or contact us for help. to make corrections and additions.

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Author Correction: Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population. NPJ Genom Med. 2023 Oct 23; 8(1):34. Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME. PMID: 37872195; PMCID: PMC10593851.

View in: PubMed Mentions:
The Parent PrU: A measure to assess personal utility of pediatric genomic results. Genet Med. 2024 Jan; 26(1):100994. Turbitt E, Kohler JN, Brothers KB, Outram SM, Rini C, Sahin-Hodoglugil N, Leo MC, Biesecker BB. PMID: 37838931; PMCID: PMC10842058.

View in: PubMed Mentions: Fields:
Gen Genetics
Translation:Humans
Barriers and Facilitators of High-Efficiency Clinical Pathway Implementation in Community Hospitals. Hosp Pediatr. 2023 Oct 01; 13(10):931-939. Outram SM, Rooholamini SN, Desai M, Edwards Y, Ja C, Morton K, Vaughan JH, Shaw JS, Gonzales R, Kaiser SV. PMID: 37697946; PMCID: PMC10520265.

View in: PubMed Mentions: Fields:
Ped Pediatrics
The Need to Standardize the Reanalysis of Genomic Sequencing Results: Findings from Interviews with Underserved Families in Genomic Research. J Bioeth Inq. 2023 Aug 25. Outram SM, Rego S, Norstad M, Ackerman S. PMID: 37624546.

View in: PubMed Mentions: Fields:
Eth Ethics
Insights from Drug Checking Programs: Practicing Bootstrap Public Health Whilst Tailoring to Local Drug User Needs. Int J Environ Res Public Health. 2023 05 30; 20(11). Ondocsin J, Ciccarone D, Moran L, Outram S, Werb D, Thomas L, Arnold EA. PMID: 37297603; PMCID: PMC10252652.

View in: PubMed Mentions: 3 Fields:
Env Environmental Health Pub Public Health
Translation:Humans PHPublic Health
Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population. NPJ Genom Med. 2023 May 26; 8(1):10. Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME. PMID: 37236975; PMCID: PMC10220040.

View in: PubMed Mentions: 6
Information-seeking preferences in diverse patients receiving a genetic testing result in the Clinical Sequencing Evidence-Generating Research (CSER) study. Genet Med. 2023 09; 25(9):100899. Slavotinek A, Prasad H, Outram S, Scollon S, Rego S, Yip T, Hoban H, Foreman KM, Kelley W, Finnila C, Berg J, Murali P, Bonini KE, Martin LJ, Hott A. PMID: 37212252; PMCID: PMC10524447.

View in: PubMed Mentions: Fields:
Gen Genetics
Translation:Humans
"I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing. AJOB Empir Bioeth. 2023; 14(4):208-217. Ackerman SL, Brown JEH, Zamora A, Outram S. PMID: 37162201; PMCID: PMC10615790.

View in: PubMed Mentions: Fields:
Eth Ethics Med Medicine (General)
Translation:Humans
Medical traumatic stress in cystic fibrosis: A qualitative analysis. J Cyst Fibros. 2023 07; 22(4):763-771. Cuneo AA, Outram S, Marsac ML, Vendlinski S, Heyman MB, Ly N, von Scheven E, Perito ER. PMID: 36925385.

View in: PubMed Mentions: Fields:
Pul Pulmonary Medicine
Translation:Humans
The social value of genomic sequencing for disadvantaged families facing rare disease. Soc Sci Med. 2022 Dec; 314:115465. Outram SM, Brown J, Ackerman SL. PMID: 36279794.

View in: PubMed Mentions: 1 Fields:
Hea Health Services Soc Social Sciences
Translation:Humans
The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective. New Genet Soc. 2022; 41(3):216-226. Outram SM, Ackerman SL, Norstad M, Koenig B. PMID: 36968265; PMCID: PMC10035592.

View in: PubMed Mentions: 1
Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis. Front Genet. 2022; 13:883225. Outram SM, Brown JEH, Zamora AN, Sahin-Hodoglugil N, Ackerman SL. PMID: 35923691; PMCID: PMC9339950.

View in: PubMed Mentions: 1
"Let's Just Wait Until She's Born": Temporal Factors That Shape Decision-Making for Prenatal Genomic Sequencing Amongst Families Underrepresented in Genomic Research. Front Genet. 2022; 13:882703. Brown JEH, Zamora AN, Outram S, Sparks TN, Lianoglou BR, Norstad M, Sahin Hodoglugil NN, Norton ME, Ackerman SL. PMID: 35669190; PMCID: PMC9164104.

View in: PubMed Mentions: 2
Perspectives and preferences regarding genomic secondary findings in underrepresented prenatal and pediatric populations: A mixed-methods approach. Genet Med. 2022 06; 24(6):1206-1216. Rego S, Hoban H, Outram S, Zamora AN, Chen F, Sahin-Hodoglugil N, Anguiano B, Norstad M, Yip T, Lianoglou B, Sparks TN, Norton ME, Koenig BA, Slavotinek AM, Ackerman SL. PMID: 35396980; PMCID: PMC9536515.

View in: PubMed Mentions: 4 Fields:
Gen Genetics
Translation:Humans
The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research. Genet Med. 2022 02; 24(2):410-418. Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL. PMID: 34906477.

View in: PubMed Mentions: 5 Fields:
Gen Genetics
Translation:Humans
Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research. Front Neurosci. 2021; 15:734182. Outram S, Muñoz KA, Kostick-Quenet K, Sanchez CE, Kalwani L, Lavingia R, Torgerson L, Sierra-Mercado D, Robinson JO, Pereira S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman WK, McGuire AL, Zuk P, Lázaro-Muñoz G. PMID: 34690676; PMCID: PMC8529029.

View in: PubMed Mentions: 3
Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium. J Clin Transl Sci. 2021; 5(1):e193. Gutierrez AM, Robinson JO, Outram SM, Smith HS, Kraft SA, Donohue KE, Biesecker BB, Brothers KB, Chen F, Hailu B, Hindorff LA, Hoban H, Hsu RL, Knight SJ, Koenig BA, Lewis KL, Lich KH, O'Daniel JM, Okuyama S, Tomlinson GE, Waltz M, Wilfond BS, Ackerman SL, Majumder MA. PMID: 34888063; PMCID: PMC8634302.

View in: PubMed Mentions: 15
The Ethics of DTC Neurotechnologies: Mapping Out Social Questions in Advance of Technological Innovation. AJOB Neurosci. 2019 Oct-Dec; 10(4):189-191. Outram S. PMID: 31642758.

View in: PubMed Mentions: Fields:
Eth Ethics Neu Neurology