Simon Outram

Title(s)	Qualitative Researcher, Medicine
School	School of Medicine
Address	Location Required, #001
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Bibliographic

Publications

Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Researchers can login to make corrections and additions, or contact us for help. to make corrections and additions.

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PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.

Information-Seeking Preferences in Diverse Patients Receiving a Genetic Testing Result in the Clinical Sequencing Evidence-Generating Research (CSER) Study. Genet Med. 2023 May 19; 100899. Slavotinek A, Prasad H, Outram S, Scollon S, Rego S, Yip T, Hoban H, Foreman KM, Kelley W, Finnila C, Berg J, Murali P, Bonini KE, Martin LJ, Hott A. PMID: 37212252.

View in: PubMed Mentions:
"I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing. AJOB Empir Bioeth. 2023 May 10; 1-10. Ackerman SL, Brown JEH, Zamora A, Outram S. PMID: 37162201.

View in: PubMed Mentions:
Medical traumatic stress in cystic fibrosis: A qualitative analysis. J Cyst Fibros. 2023 Mar 14. Cuneo AA, Outram S, Marsac ML, Vendlinski S, Heyman MB, Ly N, von Scheven E, Perito ER. PMID: 36925385.

View in: PubMed Mentions: Fields:
Pul Pulmonary Medicine
The social value of genomic sequencing for disadvantaged families facing rare disease. Soc Sci Med. 2022 Dec; 314:115465. Outram SM, Brown J, Ackerman SL. PMID: 36279794.

View in: PubMed Mentions: Fields:
Hea Health Services Soc Social Sciences
Translation:Humans
The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective. New Genet Soc. 2022; 41(3):216-226. Outram SM, Ackerman SL, Norstad M, Koenig B. PMID: 36968265; PMCID: PMC10035592.

View in: PubMed Mentions:
Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis. Front Genet. 2022; 13:883225. Outram SM, Brown JEH, Zamora AN, Sahin-Hodoglugil N, Ackerman SL. PMID: 35923691; PMCID: PMC9339950.

View in: PubMed Mentions:
"Let's Just Wait Until She's Born": Temporal Factors That Shape Decision-Making for Prenatal Genomic Sequencing Amongst Families Underrepresented in Genomic Research. Front Genet. 2022; 13:882703. Brown JEH, Zamora AN, Outram S, Sparks TN, Lianoglou BR, Norstad M, Sahin Hodoglugil NN, Norton ME, Ackerman SL. PMID: 35669190; PMCID: PMC9164104.

View in: PubMed Mentions:
Perspectives and preferences regarding genomic secondary findings in underrepresented prenatal and pediatric populations: A mixed-methods approach. Genet Med. 2022 06; 24(6):1206-1216. Rego S, Hoban H, Outram S, Zamora AN, Chen F, Sahin-Hodoglugil N, Anguiano B, Norstad M, Yip T, Lianoglou B, Sparks TN, Norton ME, Koenig BA, Slavotinek AM, Ackerman SL. PMID: 35396980; PMCID: PMC9536515.

View in: PubMed Mentions: 2 Fields:
Gen Genetics
Translation:Humans
The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research. Genet Med. 2022 02; 24(2):410-418. Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL. PMID: 34906477.

View in: PubMed Mentions: 2 Fields:
Gen Genetics
Translation:Humans
Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research. Front Neurosci. 2021; 15:734182. Outram S, Muñoz KA, Kostick-Quenet K, Sanchez CE, Kalwani L, Lavingia R, Torgerson L, Sierra-Mercado D, Robinson JO, Pereira S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman WK, McGuire AL, Zuk P, Lázaro-Muñoz G. PMID: 34690676; PMCID: PMC8529029.

View in: PubMed Mentions: 2
Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium. J Clin Transl Sci. 2021; 5(1):e193. Gutierrez AM, Robinson JO, Outram SM, Smith HS, Kraft SA, Donohue KE, Biesecker BB, Brothers KB, Chen F, Hailu B, Hindorff LA, Hoban H, Hsu RL, Knight SJ, Koenig BA, Lewis KL, Lich KH, O'Daniel JM, Okuyama S, Tomlinson GE, Waltz M, Wilfond BS, Ackerman SL, Majumder MA. PMID: 34888063; PMCID: PMC8634302.

View in: PubMed Mentions: 5
The Ethics of DTC Neurotechnologies: Mapping Out Social Questions in Advance of Technological Innovation. AJOB Neurosci. 2019 Oct-Dec; 10(4):189-191. Outram S. PMID: 31642758.

View in: PubMed Mentions: Fields:
Eth Ethics Neu Neurology