Julia Brown, PhD

Title(s)Postdoctoral Scholar, Institute for Health & Aging
SchoolSchool of Nursing
Address490 Illinois Street, #122Q
San Francisco CA 94158
ORCID ORCID Icon0000-0002-8724-693X Additional info
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    Australian National University, CanberraPhD2018Anthropology
    Australian National University, CanberraBSc/BA (Hons1)2012Psychology, Sociology, Anthropology

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    Dr. Julia Brown is an anthropologist and Postdoctoral Fellow in the UCSF Bioethics Program and the UC Berkeley Kavli Center for Ethics, Science, and the Public. She is also affiliated with the Center for Maternal-Fetal Precision Medicine at UCSF and the Centre for Global Mental Health at University of California, San Diego. She is author of The Clozapine Clinic: Health Agency in High-Risk conditions (Routledge 2022). She is currently conducting an “embedded ethics” ethnography on the emergence of prenatal gene therapies and the tensions around social inclusion for underrepresented communities. Dr. Brown is the Associate Editor of the journal Culture, Medicine, and Psychiatry. Her broad research interests are the ethics of controversial biotechnology, health equity, and lived experiences of health and caregiving.

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    The Emergence of Prenatal Gene Therapy: An “Embedded Ethics” Ethnography investigating Clinical, Scientific and Societal Values
    NIH/NHGRI 1K99HG012379-01Jul 1, 2022 - Jun 30, 2027
    Role: PI
    Description: This K99/R00 “Pathway to Independence” Award tracks the emergence of fetal gene therapy, and it is designed to improve knowledge about the complex intersection between scientific, clinical, patient and societal values and longer-term health (in)equity. For the mentored portion, in-depth ethnographic observations (including interviews) will be augmented by 1) education in clinical genetics, genomics, and therapeutics, 2) methodological training in normative analysis, and 3) political science training in deliberative community engagement. The research examines immediate clinical and patient concerns, followed by community engagement with the public, to determine how fetal gene therapy is or is not socially inclusive – as a key step in ensuring attention to health equity goals in preventive precision medicine based on prenatal gene therapy.
    Machine Learning for interpreting rare variation in comprehensive newborn screening and pharmacogenetics
    Chan Zuckerberg Biohub Intercampus Research Award May 1, 2020 - Jun 30, 2022
    Role: Postdoc

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    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Researchers can login to make corrections and additions, or contact us for help. to make corrections and additions.
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    Altmetrics Details PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
    1. Trust in prenatal exome sequencing for expectant families facing unexplained fetal anomalies. Prenat Diagn. 2024 Mar; 44(3):263-269. Rothschild HT, Lianoglou BR, Sahin Hodoglugil NN, Tick K, Brown JEH, Sparks TN. PMID: 38158591; PMCID: PMC10947859.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    2. The Next Frontier in Neurology Is In Utero. JAMA Neurol. 2023 10 01; 80(10):1015-1016. Russ JB, Brown JEH, Gano D. PMID: 37669027.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    3. On the Social Existence of Mental Health Categories: The Case of Sex Addiction. Social Problems. 2023. Brossard, B, Roy, M, Brown, J, Hemmings, B, Larocque, E. View Publication.
    4. Experimental Engagements with Ethnography, Moral Agency and Care. Medicine Anthropology Theory. 2023; 1(10):1-17. Brown, JEH, D’Arcy, M, Myers, NL, & Ziv, T. View Publication.
    5. "I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing. AJOB Empir Bioeth. 2023; 14(4):208-217. Ackerman SL, Brown JEH, Zamora A, Outram S. PMID: 37162201; PMCID: PMC10615790.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    6. The Stories We Tell or Omit​: How Ethnographic (In)Attention can Obscure Structural Racism in the Anthropology of Mental Healthcare. Medicine Anthropology Theory. 2023; 1(10):1-15. Brown, JEH. View Publication.
    7. Privacy, bias and the clinical use of facial recognition technology: A survey of genetics professionals. Am J Med Genet C Semin Med Genet. 2023 09; 193(3):e32035. Aboujaoude E, Light J, Brown JEH, Boscardin WJ, Hallgrímsson B, Klein OD. PMID: 36751120; PMCID: PMC10578447.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    8. Psychiatric genomics, mental health equity, and intersectionality: A framework for research and practice. Front Psychiatry. 2022; 13:1061705. Brown JEH, Young JL, Martinez-Martin N. PMID: 36620660; PMCID: PMC9812559.
      View in: PubMed   Mentions: 2  
    9. Functional genomics of OCTN2 variants informs protein-specific variant effect predictor for Carnitine Transporter Deficiency. Proc Natl Acad Sci U S A. 2022 Nov 16; 119(46):e2210247119. Koleske ML, McInnes G, Brown JEH, Thomas N, Hutchinson K, Chin MY, Koehl A, Arkin MR, Schlessinger A, Gallagher RC, Song YS, Altman RB, Giacomini KM. PMID: 36343260; PMCID: PMC9674959.
      View in: PubMed   Mentions: 2     Fields:    Translation:HumansCells
    10. The social value of genomic sequencing for disadvantaged families facing rare disease. Soc Sci Med. 2022 Dec; 314:115465. Outram SM, Brown J, Ackerman SL. PMID: 36279794.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    11. Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis. Front Genet. 2022; 13:883225. Outram SM, Brown JEH, Zamora AN, Sahin-Hodoglugil N, Ackerman SL. PMID: 35923691; PMCID: PMC9339950.
      View in: PubMed   Mentions: 1  
    12. "Let's Just Wait Until She's Born": Temporal Factors That Shape Decision-Making for Prenatal Genomic Sequencing Amongst Families Underrepresented in Genomic Research. Front Genet. 2022; 13:882703. Brown JEH, Zamora AN, Outram S, Sparks TN, Lianoglou BR, Norstad M, Sahin Hodoglugil NN, Norton ME, Ackerman SL. PMID: 35669190; PMCID: PMC9164104.
      View in: PubMed   Mentions: 2  
    13. The Clozapine Clinic: Health Agency in High-Risk Conditions. The International Society for Psychological and Social Approaches to Psychosis Book Series. 2022. Julia E. H. Brown. . View Publication.
    14. How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More than the Privileged Few with Access to a Trusted Clinician? Am J Bioeth. 2022 02; 22(2):1-3. Brown JEH, Koenig BA. PMID: 35089829.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    15. Fetal therapies and trials for lysosomal storage diseases: a survey of attitudes of parents and patients. Orphanet J Rare Dis. 2022 01 29; 17(1):25. Schwab ME, Brown JEH, Lianoglou B, Jin C, Conroy PC, Gallagher RC, Harmatz P, MacKenzie TC. PMID: 35093147; PMCID: PMC8800365.
      View in: PubMed   Mentions: 2     Fields:    Translation:Humans
    16. Ethical, Legal, and Social Implications of Fetal Gene Therapy. Clin Obstet Gynecol. 2021 12 01; 64(4):933-940. Brown JEH, Koenig BA. PMID: 34668890.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    17. The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research. Genet Med. 2022 02; 24(2):410-418. Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL. PMID: 34906477.
      View in: PubMed   Mentions: 5     Fields:    Translation:Humans
    18. AI chatbots cannot replace human interactions in the pursuit of more inclusive mental healthcare. Social Science & Medicine - Mental Health. 2021; (1). Brown, JEH. & Halpern, J. View Publication.
    19. Opportunities and challenges for the computational interpretation of rare variation in clinically important genes. Am J Hum Genet. 2021 04 01; 108(4):535-548. McInnes G, Sharo AG, Koleske ML, Brown JEH, Norstad M, Adhikari AN, Wang S, Brenner SE, Halpern J, Koenig BA, Magnus DC, Gallagher RC, Giacomini KM, Altman RB. PMID: 33798442; PMCID: PMC8059338.
      View in: PubMed   Mentions: 24     Fields:    Translation:Humans
    20. The impact of public health palliative care interventions on health system outcomes: A systematic review. Palliat Med. 2021 03; 35(3):473-485. Collins A, Brown JEH, Mills J, Philip J. PMID: 33353507.
      View in: PubMed   Mentions: 7     Fields:    Translation:HumansPHPublic Health
    21. Relegating Psychosis: Blood Work and "Routine Connection" in the Clozapine Clinic. Cult Med Psychiatry. 2020 Jun; 44(2):263-285. Brown JEH. PMID: 31598807.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    22. Can e-cigarettes improve the well-being of people with mental health disorders? Int J Drug Policy. 2019 11; 73:170-171. Brown JEH, Gartner C, Carter A. PMID: 31350106.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    23. Raising Health Expectations for Schizophrenia Patients. Anthropology News. 2018; 59(5):e81-e86. Brown, JEH. View Publication.
    24. 'Doing things little by little': Smoking and vaping while being pharmaceutically treated for schizophrenia. Anthropological Forum. 2018; 28(2):158-170. Brown, JEH. View Publication.
    25. Actively Negotiating the Mind-Body Divide: How Clozapine-Treated Schizophrenia Patients Make Health for Themselves. Cult Med Psychiatry. 2017 Sep; 41(3):368-381. Brown JEH, Dennis S. PMID: 28074346.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    26. Well-being in clozapine-treated schizophrenia patients: The significance of positive symptoms. Compr Psychiatry. 2016 07; 68:140-6. Brown JE, Mezquida G, Fernandez-Egea E. PMID: 27234195.
      View in: PubMed   Mentions: 5     Fields:    Translation:Humans
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