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Barbara Koenig, PhD, RN

Title(s)Professor, Institute for Health & Aging
SchoolSchool of Nursing
Phone415-476-3786
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    Collapse Biography 
    Collapse Education and Training
    University of California, San Francisco & BerkeleyPhD1988 Graduate Division (Medical Anthropology)
    University of Minnesota, MinneapolisBS1974Nursing (with distinction)
    University of Minnesota, MinneapolisBA1976Asian History (magna cum laude)

    Collapse Research 
    Collapse Research Activities and Funding
    Genomic sequencing to aid diagnosis in pediatric and prenatal practice: Examining clinical utility, ethical implications, payer coverage, and data integration in a diverse population.
    NIH/NHGRI U01HG009599Aug 4, 2017 - May 31, 2021
    Role: Principal Investigator
    Precision Genomics in the WISDOM Pragmatic Clinical Trial: An Embedded ELSI Study of Risk-based Breast Cancer Screening
    NIH/NCI R01CA211999Jan 12, 2017 - Dec 31, 2021
    Role: Principal Investigator
    Sequencing of Newborn Blood Spot DNA to Improve and Expand Newborn Screening
    NIH/NICHD U19HD077627Sep 5, 2013 - Aug 31, 2019
    Role: Principal Investigator
    Center for Transdisciplinary ELSI Research in Translational Genomics
    NIH/NHGRI P20HG007243Jun 16, 2013 - May 31, 2017
    Role: Principal Investigator
    Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI Experiment
    NIH/NCI R01CA154517Sep 12, 2011 - Jul 31, 2016
    Role: Principal Investigator
    Conference Proposal Neuroethics: Mapping the Field
    NIH/NINDS R13NS044670May 12, 2002 - Apr 30, 2003
    Role: Principal Investigator
    Translating Addiction Genomics Research into Practice: Examining Ethics &Policy
    NIH/NIDA R01DA014577Dec 1, 2001 - Jul 31, 2012
    Role: Principal Investigator
    Role Description: PI through 2011
    PROMOTING EFFECTIVE COMMUNICATION AND DECISION-MAKING FO
    NIH P01HS010856Sep 27, 2000 - Aug 31, 2006
    Role: Co-Investigator
    A CASE-BASED ETHICS CURRICULUM FOR THE BIOTECH INDUSTRY
    NIH/NHGRI R25HG002082Mar 20, 2000 - Feb 28, 2002
    Role: Principal Investigator
    CULTURAL PLURALISM ÐICAL DECISION-MAKING IN NURSING
    NIH/NINR R01NR002906Feb 1, 1992 - Feb 29, 1996
    Role: Principal Investigator

    Collapse ORNG Applications 
    Collapse Clinical Trials
    Collapse Websites
    Collapse In The News
    Collapse Twitter

    Collapse Bibliographic 
    Collapse Publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Researchers can login to make corrections and additions, or contact us for help.
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    1. Childerhose JE, Finnila CR, Yu JH, Koenig BA, McEwen J, Berg SL, Wilfond BS, Appelbaum PS, Brothers KB. Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some. Ethics Hum Res. 2019 Sep; 41(5):2-15. PMID: 31541538.
      View in: PubMed
    2. Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kauffman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS. Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium. Per Med. 2019 Jul; 16(4):325-333. PMID: 31313633.
      View in: PubMed
    3. Cain CL, Koenig BA, Starks H, Thomas J, Forbes L, McCleskey S, Wenger NS. Hospital and Health System Policies Concerning the California End of Life Option Act. J Palliat Med. 2019 Jul 12. PMID: 31298605.
      View in: PubMed
    4. Cain CL, Koenig BA, Starks H, Thomas J, Forbes L, McCleskey S, Wenger NS. Hospital Responses to the End of Life Option Act: Implementation of Aid in Dying in California. JAMA Intern Med. 2019 Jul 01; 179(7):985-987. PMID: 30958507.
      View in: PubMed
    5. Tilburt J, Yost KJ, Lenz HJ, Zúñiga ML, O'Byrne T, Branda ME, Leppin AL, Kimball B, Fernandez C, Jatoi A, Barwise A, Kumbamu A, Montori V, Koenig BA, Geller G, Larson S, Roter DL. A Multicenter Comparison of Complementary and Alternative Medicine (CAM) Discussions in Oncology Care: The Role of Time, Patient-Centeredness, and Practice Context. Oncologist. 2019 May 17. PMID: 31101701.
      View in: PubMed
    6. Horowitz CR, Orlando LA, Slavotinek AM, Peterson J, Angelo F, Biesecker B, Bonham VL, Cameron LD, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hindorff LA, Jarvik GP, Kaufman D, Kenny EE, Knight SJ, Koenig BA, Korf BR, Madden E, McGuire AL, Ou J, Wasserstein MP, Robinson M, Leventhal H, Sanderson SC. The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research. Am J Hum Genet. 2019 Jun 06; 104(6):1088-1096. PMID: 31104772.
      View in: PubMed
    7. Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J. Consent insufficient for data release. Science. 2019 05 03; 364(6439):445-446. PMID: 31048483.
      View in: PubMed
    8. Garrett JR, Lantos JD, Biesecker LG, Childerhose JE, Chung WK, Holm IA, Koenig BA, McEwen JE, Wilfond BS, Brothers K. Rethinking the "open future" argument against predictive genetic testing of children. Genet Med. 2019 Oct; 21(10):2190-2198. PMID: 30894702.
      View in: PubMed
    9. Majumder MA, Bollinger JM, Villanueva AG, Deverka PA, Koenig BA. The Role of Participants in a Medical Information Commons. J Law Med Ethics. 2019 Mar; 47(1):51-61. PMID: 30994075.
      View in: PubMed
    10. Deverka PA, Gilmore D, Richmond J, Smith Z, Mangrum R, Koenig BA, Cook-Deegan R, Villanueva AG, Majumder MA, McGuire AL. Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. J Law Med Ethics. 2019 Mar; 47(1):70-87. PMID: 30994071.
      View in: PubMed
    11. Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MA. Characterizing the Biomedical Data-Sharing Landscape. J Law Med Ethics. 2019 Mar; 47(1):21-30. PMID: 30994069.
      View in: PubMed
    12. McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, Koenig BA, Lambright JM, Mattison JE, O'Donnell C, Rai AK, Rodriguez LL, Simoncelli T, Terry SF, Thorogood AM, Watson MS, Wilbanks JT, Cook-Deegan R. Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons. J Law Med Ethics. 2019 Mar; 47(1):12-20. PMID: 30994067.
      View in: PubMed
    13. Bryant J, Markes A, Woolridge T, Cerruti D, Dzeng E, Koenig B, Diab M. Concurrent and Overlapping Surgery: Perspectives From Parents of Adolescents Undergoing Spinal Posterior Instrumented Fusion for Idiopathic Scoliosis. Spine (Phila Pa 1976). 2019 Jan 01; 44(1):53-59. PMID: 29901538.
      View in: PubMed
    14. Gordon DR, Radecki Breitkopf C, Robinson M, Petersen WO, Egginton JS, Chaffee KG, Petersen GM, Wolf SM, Koenig BA. Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences. AJOB Empir Bioeth. 2019 Jan-Mar; 10(1):1-22. PMID: 30596322.
      View in: PubMed
    15. Popejoy AB, Ritter DI, Crooks K, Currey E, Fullerton SM, Hindorff LA, Koenig B, Ramos EM, Sorokin EP, Wand H, Wright MW, Zou J, Gignoux CR, Bonham VL, Plon SE, Bustamante CD. The clinical imperative for inclusivity: Race, ethnicity, and ancestry (REA) in genomics. Hum Mutat. 2018 11; 39(11):1713-1720. PMID: 30311373.
      View in: PubMed
    16. Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hassmiller-Lich K, Joseph G, Kenny EE, Koenig BA, Knight S, Kwok PY, Lewis KL, McGuire AL, Norton ME, Ou J, Parsons DW, Powell BC, Risch N, Robinson M, Rini C, Scollon S, Slavotinek AM, Veenstra DL, Wasserstein MP, Wilfond BS, Hindorff LA, Plon SE, Jarvik GP. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations. Am J Hum Genet. 2018 09 06; 103(3):319-327. PMID: 30193136.
      View in: PubMed
    17. Kumbamu A, Geller G, Leppin A, Fernandez C, Tilburt J, Koenig B. Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology. J Altern Complement Med. 2018 Sep/Oct; 24(9-10):996-1002. PMID: 30156425.
      View in: PubMed
    18. Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS, Bergstrom K, Biesecker LG, Biswas S, Bowling KM, Chung WK, Clayton EW, Conlin LK, Cooper GM, Dulik MC, Garraway LA, Ghazani AA, Green RC, Hiatt SM, Jamal SM, Jarvik GP, Goddard KAB, Wilfond BS. Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience. Mol Genet Genomic Med. 2018 11; 6(6):898-909. PMID: 30133189.
      View in: PubMed
    19. Wehner MR, Dalma N, Landefeld C, Pare-Anastasiadou A, Koutelidas I, Chren MM, Aji N, Teng CE, Koenig BA, Tang J, Covinsky K, Linos E. Natural history of lesions suspicious for basal cell carcinoma in older adults in Ikaria, Greece. Br J Dermatol. 2018 09; 179(3):767-768. PMID: 29741766.
      View in: PubMed
    20. Johnston J, Lantos JD, Goldenberg A, Chen F, Parens E, Koenig BA. Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies. Hastings Cent Rep. 2018 Jul; 48 Suppl 2:S2-S6. PMID: 30133723.
      View in: PubMed
    21. Dingel MJ, Ostergren J, Koenig BA, McCormick J. "Why did I get that part of you?" Understanding addiction genetics through family history. Public Underst Sci. 2019 01; 28(1):53-67. PMID: 29947292.
      View in: PubMed
    22. Radecki Breitkopf C, Wolf SM, Chaffee KG, Robinson ME, Lindor NM, Gordon DR, Koenig BA, Petersen GM. Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners. J Empir Res Hum Res Ethics. 2018 07; 13(3):295-304. PMID: 29701109.
      View in: PubMed
    23. Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants. J Law Med Ethics. 2018 03; 46(1):87-109. PMID: 30008546.
      View in: PubMed
    24. Kimball BC, Geller G, Warsame R, Kumbamu A, Jatoi A, Koenig B, Tilburt JC. Looking Back, Looking Forward: The Ethical Framing of Complementary and Alternative Medicine in Oncology Over the Last 20 Years. Oncologist. 2018 06; 23(6):639-641. PMID: 29523647.
      View in: PubMed
    25. Kaye J, Terry SF, Juengst E, Coy S, Harris JR, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R, Kato K, Rial-Sebbag E, Marshall P, Koenig B, Cambon-Thomsen A. Including all voices in international data-sharing governance. Hum Genomics. 2018 03 07; 12(1):13. PMID: 29514717.
      View in: PubMed
    26. Kao AC, Jager AJ, Koenig BA, Moller AC, Tutty MA, Williams GC, Wright SM. Physician Perception of Pay Fairness and its Association with Work Satisfaction, Intent to Leave Practice, and Personal Health. J Gen Intern Med. 2018 06; 33(6):812-817. PMID: 29380217.
      View in: PubMed
    27. Ackerman SL, Koenig BA. Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories. AJOB Empir Bioeth. 2018 Jan-Mar; 9(1):48-57. PMID: 29131714.
      View in: PubMed
    28. Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, Harris C, Knoppers BM, Koenig BA, Kohane IS, La Rosa S, Mattison J, O'Donnell CJ, Rai AK, Rehm HL, Rodriguez LL, Shelton R, Simoncelli T, Terry SF, Watson MS, Wilbanks J, Cook-Deegan R, McGuire AL. Creating a data resource: what will it take to build a medical information commons? Genome Med. 2017 09 22; 9(1):84. PMID: 28938910.
      View in: PubMed
    29. Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, Burke W. Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genet Med. 2018 04; 20(5):545-553. PMID: 28858330.
      View in: PubMed
    30. Dingel MJ, Ostergren J, Heaney K, Koenig BA, McCormick J. "I don't have to know why it snows, I just have to shovel it!": Addiction Recovery, Genetic Frameworks, and Biological Citizenship. Biosocieties. 2017 Dec; 12(4):568-587. PMID: 29552089.
      View in: PubMed
    31. Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS. Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience. Milbank Q. 2017 06; 95(2):291-318. PMID: 28589610.
      View in: PubMed
    32. Petrillo LA, Dzeng E, Harrison KL, Forbes L, Scribner B, Koenig BA. How California Prepared for Implementation of Physician-Assisted Death: A Primer. Am J Public Health. 2017 06; 107(6):883-888. PMID: 28426307.
      View in: PubMed
    33. Zook M, Barocas S, Boyd D, Crawford K, Keller E, Gangadharan SP, Goodman A, Hollander R, Koenig BA, Metcalf J, Narayanan A, Nelson A, Pasquale F. Ten simple rules for responsible big data research. PLoS Comput Biol. 2017 03; 13(3):e1005399. PMID: 28358831.
      View in: PubMed
    34. Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D. Community recommendations on biobank governance: Results from a deliberative community engagement in California. PLoS One. 2017; 12(2):e0172582. PMID: 28235046.
      View in: PubMed
    35. De Clercq E, Kaye J, Wolf SM, Koenig BA, Elger BS. Returning Results in Biobank Research: Global Trends and Solutions. Genet Test Mol Biomarkers. 2017 Mar; 21(3):128-131. PMID: 28146646.
      View in: PubMed
    36. Carey EC, Dose AM, Humeniuk KM, Kuan YC, Hicks AD, Ottenberg AL, Tilburt JC, Koenig B. The Experience of Hospital Death: Assessing the Quality of Care at an Academic Medical Center. Am J Hosp Palliat Care. 2018 Feb; 35(2):189-197. PMID: 28103711.
      View in: PubMed
    37. Han PKJ, Umstead KL, Bernhardt BA, Green RC, Joffe S, Koenig B, Krantz I, Waterston LB, Biesecker LG, Biesecker BB. A taxonomy of medical uncertainties in clinical genome sequencing. Genet Med. 2017 08; 19(8):918-925. PMID: 28102863.
      View in: PubMed
    38. Berg JS, Agrawal PB, Bailey DB, Beggs AH, Brenner SE, Brower AM, Cakici JA, Ceyhan-Birsoy O, Chan K, Chen F, Currier RJ, Dukhovny D, Green RC, Harris-Wai J, Holm IA, Iglesias B, Joseph G, Kingsmore SF, Koenig BA, Kwok PY, Lantos J, Leeder SJ, Lewis MA, McGuire AL, Milko LV, Mooney SD, Parad RB, Pereira S, Petrikin J, Powell BC, Powell CM, Puck JM, Rehm HL, Risch N, Roche M, Shieh JT, Veeraraghavan N, Watson MS, Willig L, Yu TW, Urv T, Wise AL. Newborn Sequencing in Genomic Medicine and Public Health. Pediatrics. 2017 Feb; 139(2). PMID: 28096516.
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    39. O'Doherty KC, Christofides E, Yen J, Bentzen HB, Burke W, Hallowell N, Koenig BA, Willison DJ. If you build it, they will come: unintended future uses of organised health data collections. BMC Med Ethics. 2016 09 06; 17(1):54. PMID: 27600117.
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    40. Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 07 07; 99(1):246. PMID: 27392080.
      View in: PubMed
    41. Roter DL, Yost KJ, O'Byrne T, Branda M, Leppin A, Kimball B, Fernandez C, Jatoi A, Kumbamu A, Montori V, Koenig B, Geller G, Larson S, Tilburt J. Communication predictors and consequences of Complementary and Alternative Medicine (CAM) discussions in oncology visits. Patient Educ Couns. 2016 09; 99(9):1519-25. PMID: 27296081.
      View in: PubMed
    42. Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 06 02; 98(6):1051-1066. PMID: 27181682.
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    43. Joseph G, Chen F, Harris-Wai J, Puck JM, Young C, Koenig BA. Parental Views on Expanded Newborn Screening Using Whole-Genome Sequencing. Pediatrics. 2016 Jan; 137 Suppl 1:S36-46. PMID: 26729702.
      View in: PubMed
    44. McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH. Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice. Pediatrics. 2015 Oct; 136(4):e974-82. PMID: 26371191.
      View in: PubMed
    45. Frye MA, Doederlein A, Koenig B, McElroy SL, Nassan M, Seymour LR, Biernacka JM, Daniels AS. National survey and community advisory board development for a bipolar disorder biobank. Bipolar Disord. 2015 Sep; 17(6):598-605. PMID: 26291791.
      View in: PubMed
    46. Dingel MJ, Ostergren J, McCormick JB, Hammer R, Koenig BA. The media and behavioral genetics: Alternatives coexisting with addiction genetics. Sci Technol Human Values. 2015 Jul 01; 40(4):459-486. PMID: 26392644.
      View in: PubMed
    47. Ostergren JE, Dingel MJ, McCormick JB, Koenig BA. Unwarranted optimism in media portrayals of genetic research on addiction overshadows critical ethical and social concerns. J Health Commun. 2015; 20(5):555-65. PMID: 25806781.
      View in: PubMed
    48. Garrett SB, Koenig BA, Brown A, Hult JR, Boyd EA, Dry S, Dohan D. EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California. Clin Transl Sci. 2015 Aug; 8(4):362-6. PMID: 25581047.
      View in: PubMed
    49. Dose AM, Carey EC, Rhudy LM, Chiu Y, Frimannsdottir K, Ottenberg AL, Koenig BA. Dying in the Hospital: Perspectives of family members. J Palliat Care. 2015; 31(1):13-20. PMID: 26399086.
      View in: PubMed
    50. Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations. J Law Med Ethics. 2015; 43(3):440-63. PMID: 26479555.
      View in: PubMed
    51. Breitkopf CR, Petersen GM, Wolf SM, Chaffee KG, Robinson ME, Gordon DR, Lindor NM, Koenig BA. Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank. J Law Med Ethics. 2015; 43(3):464-75. PMID: 26479556.
      View in: PubMed
    52. Wolf SM, Burke W, Koenig BA. Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide. J Law Med Ethics. 2015; 43(3):486-501. PMID: 26479558.
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    53. Garrett SB, Dohan D, Koenig BA. Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California. Am J Bioeth. 2015; 15(9):56-7. PMID: 26305757.
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    54. Koenig BA. Have we asked too much of consent? Hastings Cent Rep. 2014 Jul-Aug; 44(4):33-4. PMID: 25043364.
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    55. Ostergren JE, Hammer RR, Dingel MJ, Koenig BA, McCormick JB. Challenges in translational research: the views of addiction scientists. PLoS One. 2014; 9(4):e93482. PMID: 24705385.
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    56. Kimball BC, James KM, Yost KJ, Fernandez CA, Kumbamu A, Leppin AL, Robinson ME, Geller G, Roter DL, Larson SM, Lenz HJ, Garcia AA, Braddock CH, Jatoi A, de Nuncio ML, Montori VM, Koenig BA, Tilburt JC. Listening in on difficult conversations: an observational, multi-center investigation of real-time conversations in medical oncology. BMC Cancer. 2013 Oct 04; 13:455. PMID: 24093624.
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    57. Hartzler A, McCarty CA, Rasmussen LV, Williams MS, Brilliant M, Bowton EA, Clayton EW, Faucett WA, Ferryman K, Field JR, Fullerton SM, Horowitz CR, Koenig BA, McCormick JB, Ralston JD, Sanderson SC, Smith ME, Trinidad SB. Stakeholder engagement: a key component of integrating genomic information into electronic health records. Genet Med. 2013 Oct; 15(10):792-801. PMID: 24030437.
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    58. Hazin R, Brothers KB, Malin BA, Koenig BA, Sanderson SC, Rothstein MA, Williams MS, Clayton EW, Kullo IJ. Ethical, legal, and social implications of incorporating genomic information into electronic health records. Genet Med. 2013 Oct; 15(10):810-6. PMID: 24030434.
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    59. Olson JE, Ryu E, Johnson KJ, Koenig BA, Maschke KJ, Morrisette JA, Liebow M, Takahashi PY, Fredericksen ZS, Sharma RG, Anderson KS, Hathcock MA, Carnahan JA, Pathak J, Lindor NM, Beebe TJ, Thibodeau SN, Cerhan JR. The Mayo Clinic Biobank: a building block for individualized medicine. Mayo Clin Proc. 2013 Sep; 88(9):952-62. PMID: 24001487.
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    60. McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC. Point-counterpoint. Ethics and genomic incidental findings. Science. 2013 May 31; 340(6136):1047-8. PMID: 23686340.
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    61. Koenig BA. Fixing research subjects protection in the United States: moving beyond consent. Mayo Clin Proc. 2013 May; 88(5):428-30. PMID: 23639494.
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    62. Ridgeway JL, Han LC, Olson JE, Lackore KA, Koenig BA, Beebe TJ, Ziegenfuss JY. Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank? Public Health Genomics. 2013; 16(3):118-26. PMID: 23595106.
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    63. Hammer R, Dingel M, Ostergren J, Partridge B, McCormick J, Koenig BA. Addiction: Current Criticism of the Brain Disease Paradigm. AJOB Neurosci. 2013; 4(3):27-32. PMID: 24693488.
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    64. Hammer RR, Dingel MJ, Ostergren JE, Nowakowski KE, Koenig BA. The experience of addiction as told by the addicted: incorporating biological understandings into self-story. Cult Med Psychiatry. 2012 Dec; 36(4):712-34. PMID: 23081782.
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    65. Koenig BA. Addiction science, meet translational genomics. Addiction. 2012 Dec; 107(12):2079-80. PMID: 23167643.
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    66. Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genet Med. 2012 Apr; 14(4):361-84. PMID: 22436882.
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    67. Fullerton SM, Wolf WA, Brothers KB, Clayton EW, Crawford DC, Denny JC, Greenland P, Koenig BA, Leppig KA, Lindor NM, McCarty CA, McGuire AL, McPeek Hinz ER, Mirel DB, Ramos EM, Ritchie MD, Smith ME, Waudby CJ, Burke W, Jarvik GP. Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network. Genet Med. 2012 Apr; 14(4):424-31. PMID: 22361898.
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    68. Dingel MJ, Karkazis K, Koenig BA. Framing Nicotine Addiction as a "Disease of the Brain": Social and Ethical Consequences. Soc Sci Q. 2012 Dec 01; 92(5):1363-1388. PMID: 23476081.
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    69. James KM, Cowl CT, Tilburt JC, Sinicrope PS, Robinson ME, Frimannsdottir KR, Tiedje K, Koenig BA. Impact of direct-to-consumer predictive genomic testing on risk perception and worry among patients receiving routine care in a preventive health clinic. Mayo Clin Proc. 2011 Oct; 86(10):933-40. PMID: 21964170.
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    70. Mueller PS, Ottenberg AL, Hayes DL, Koenig BA. "I felt like the angel of death": role conflicts and moral distress among allied professionals employed by the US cardiovascular implantable electronic device industry. J Interv Card Electrophysiol. 2011 Dec; 32(3):253-61. PMID: 21861198.
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    71. Kramer DB, Ottenberg AL, Gerhardson S, Mueller LA, Kaufman SR, Koenig BA, Mueller PS. "Just Because We Can Doesn't Mean We Should": views of nurses on deactivation of pacemakers and implantable cardioverter-defibrillators. J Interv Card Electrophysiol. 2011 Dec; 32(3):243-52. PMID: 21805140.
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    72. Dingel MJ, Hicks AD, Robinson ME, Koenig BA. Integrating genetic studies of nicotine addiction into public health practice: stakeholder views on challenges, barriers and opportunities. Public Health Genomics. 2012; 15(1):46-55. PMID: 21757875.
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    73. McGuire AL, Basford M, Dressler LG, Fullerton SM, Koenig BA, Li R, McCarty CA, Ramos E, Smith ME, Somkin CP, Waudby C, Wolf WA, Clayton EW. Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience. Genome Res. 2011 Jul; 21(7):1001-7. PMID: 21632745.
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    74. Ottenberg AL, Wu JT, Poland GA, Jacobson RM, Koenig BA, Tilburt JC. Vaccinating health care workers against influenza: the ethical and legal rationale for a mandate. Am J Public Health. 2011 Feb; 101(2):212-6. PMID: 21228284.
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    75. Kaufman SR, Mueller PS, Ottenberg AL, Koenig BA. Ironic technology: Old age and the implantable cardioverter defibrillator in US health care. Soc Sci Med. 2011 Jan; 72(1):6-14. PMID: 21126815.
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    76. Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL. Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genet Med. 2010 Oct; 12(10):616-20. PMID: 20733502.
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    77. Orme NM, Fletcher JG, Siddiki HA, Harmsen WS, O'Byrne MM, Port JD, Tremaine WJ, Pitot HC, McFarland EG, Robinson ME, Koenig BA, King BF, Wolf SM. Incidental findings in imaging research: evaluating incidence, benefit, and burden. Arch Intern Med. 2010 Sep 27; 170(17):1525-32. PMID: 20876402.
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    78. Gundle KR, Dingel MJ, Koenig BA. 'To prove this is the industry's best hope': big tobacco's support of research on the genetics of nicotine addiction. Addiction. 2010 Jun; 105(6):974-83. PMID: 20659058.
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    79. Caulfield T, Fullerton SM, Ali-Khan SE, Arbour L, Burchard EG, Cooper RS, Hardy BJ, Harry S, Hyde-Lay R, Kahn J, Kittles R, Koenig BA, Lee SS, Malinowski M, Ravitsky V, Sankar P, Scherer SW, Séguin B, Shickle D, Suarez-Kurtz G, Daar AS. Race and ancestry in biomedical research: exploring the challenges. Genome Med. 2009 Jan 21; 1(1):8. PMID: 19348695.
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    80. Tilburt JC, Mueller PS, Ottenberg AL, Poland GA, Koenig BA. Facing the challenges of influenza in healthcare settings: the ethical rationale for mandatory seasonal influenza vaccination and its implications for future pandemics. Vaccine. 2008 Sep 12; 26 Suppl 4:D27-30. PMID: 19230155.
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    81. Lee SS, Mountain J, Koenig B, Altman R, Brown M, Camarillo A, Cavalli-Sforza L, Cho M, Eberhardt J, Feldman M, Ford R, Greely H, King R, Markus H, Satz D, Snipp M, Steele C, Underhill P. The ethics of characterizing difference: guiding principles on using racial categories in human genetics. Genome Biol. 2008; 9(7):404. PMID: 18638359.
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    82. Griffin MD, Koenig BA, Schears RM. Topics in transplant ethics. Transplant Rev (Orlando). 2008 Jul; 22(3):151-3. PMID: 18631868.
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    83. Siddiki H, Fletcher JG, McFarland B, Dajani N, Orme N, Koenig B, Strobel M, Wolf SM. Incidental findings in CT colonography: literature review and survey of current research practice. J Law Med Ethics. 2008; 36(2):320-31, 213. PMID: 18547201.
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    84. Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS. Managing incidental findings in human subjects research: analysis and recommendations. J Law Med Ethics. 2008; 36(2):219-48, 211. PMID: 18547191.
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    85. Mrazek M, Koenig B, Skime M, Snyder K, Hook C, Black J, Mrazek D. Assessing attitudes about genetic testing as a component of continuing medical education. Acad Psychiatry. 2007 Nov-Dec; 31(6):447-51. PMID: 18079506.
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    86. Mueller PS, Montori VM, Bassler D, Koenig BA, Guyatt GH. Ethical issues in stopping randomized trials early because of apparent benefit. Ann Intern Med. 2007 Jun 19; 146(12):878-81. PMID: 17577007.
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    87. Starks H, Back AL, Pearlman RA, Koenig BA, Hsu C, Gordon JR, Bharucha AJ. Family member involvement in hastened death. Death Stud. 2007 Feb; 31(2):105-30. PMID: 17410692.
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    88. Mueller PS, Koenig BA. Systematic review of ethics consultation: a route to curriculum development in post-graduate medical education. Am J Bioeth. 2006 Jul-Aug; 6(4):21-3. PMID: 16885096.
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    89. Caron L, Karkazis K, Raffin TA, Swan G, Koenig BA. Nicotine addiction through a neurogenomic prism: ethics, public health, and smoking. Nicotine Tob Res. 2005 Apr; 7(2):181-97. PMID: 16036275.
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    90. Pearlman RA, Hsu C, Starks H, Back AL, Gordon JR, Bharucha AJ, Koenig BA, Battin MP. Motivations for physician-assisted suicide. J Gen Intern Med. 2005 Mar; 20(3):234-9. PMID: 15836526.
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    91. Illes J, Kann D, Karetsky K, Letourneau P, Raffin TA, Schraedley-Desmond P, Koenig BA, Atlas SW. Advertising, patient decision making, and self-referral for computed tomographic and magnetic resonance imaging. Arch Intern Med. 2004 Dec 13-27; 164(22):2415-9. PMID: 15596630.
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    92. Sankar P, Cho MK, Condit CM, Hunt LM, Koenig B, Marshall P, Lee SS, Spicer P. Genetic research and health disparities. JAMA. 2004 Jun 23; 291(24):2985-9. PMID: 15213210.
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    93. Marshall P, Koenig B. Accounting for culture in a globalized bioethics. J Law Med Ethics. 2004; 32(2):252-66, 191. PMID: 15301190.
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    94. Swan GE, Hudmon KS, Jack LM, Hemberger K, Carmelli D, Khroyan TV, Ring HZ, Hops H, Andrews JA, Tildesley E, McBride D, Benowitz N, Webster C, Wilhelmsen KC, Feiler HS, Koenig B, Caron L, Illes J, Cheng LS. Environmental and genetic determinants of tobacco use: methodology for a multidisciplinary, longitudinal family-based investigation. Cancer Epidemiol Biomarkers Prev. 2003 Oct; 12(10):994-1005. PMID: 14578134.
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    95. Illes J, Fan E, Koenig BA, Raffin TA, Kann D, Atlas SW. Self-referred whole-body CT imaging: current implications for health care consumers. Radiology. 2003 Aug; 228(2):346-51. PMID: 12893896.
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    96. Koenig BA, Back AL, Crawley LM. Qualitative methods in end-of-life research: recommendations to enhance the protection of human subjects. J Pain Symptom Manage. 2003 Apr; 25(4):S43-52. PMID: 12691696.
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    97. Uhlmann WR, Bennett R, Botkin JR, Botstein D, Boughman JA, Chakravarti A, Clayton EW, Kahn J, Koenig B, Murray TH, Olson MV, Rowley J, Terry S, Valle D. Planning the genome institute's future. Science. 2003 Mar 07; 299(5612):1515; author reply 1515. PMID: 12624247.
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    98. Koenig BA. Dead donors and the "shortage" of human organs: are we missing the point? Am J Bioeth. 2003; 3(1):26-7. PMID: 12859838.
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    99. Drought TS, Koenig BA. "Choice" in end-of-life decision making: researching fact or fiction? Gerontologist. 2002 Oct; 42 Spec No 3:114-28. PMID: 12415142.
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    100. Crawley LM, Marshall PA, Lo B, Koenig BA. Strategies for culturally effective end-of-life care. Ann Intern Med. 2002 May 07; 136(9):673-9. PMID: 11992303.
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    101. Koenig BA, Greely H, Schacter DL, Winslade WJ, Mobley W. Brain science and social policy. Cerebrum. 2002; 4(3):59-62. PMID: 16619414.
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    102. Koenig BA. Why not grant primacy to the family? Am J Bioeth. 2001; 1(3):33-4. PMID: 11954590.
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    103. Lee SS, Mountain J, Koenig BA. The meanings of "race" in the new genomics: implications for health disparities research. Yale J Health Policy Law Ethics. 2001; 1:33-75. PMID: 12669320.
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    104. Ruhnke GW, Wilson SR, Akamatsu T, Kinoue T, Takashima Y, Goldstein MK, Koenig BA, Hornberger JC, Raffin TA. Ethical decision making and patient autonomy: a comparison of physicians and patients in Japan and the United States. Chest. 2000 Oct; 118(4):1172-82. PMID: 11035693.
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    105. Lynn J, Arkes HR, Stevens M, Cohn F, Koenig B, Fox E, Dawson NV, Phillips RS, Hamel MB, Tsevat J. Rethinking fundamental assumptions: SUPPORT's implications for future reform. Study to Understand Prognoses and Preferences and Risks of Treatment. J Am Geriatr Soc. 2000 05; 48(S1):S214-21. PMID: 10809478.
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    106. Press N, Fishman JR, Koenig BA. Collective fear, individualized risk: the social and cultural context of genetic testing for breast cancer. Nurs Ethics. 2000 May; 7(3):237-49. PMID: 10986947.
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    107. Daly MB, Offit K, Li F, Glendon G, Yaker A, West D, Koenig B, McCredie M, Venne V, Nayfield S, Seminara D. Participation in the cooperative family registry for breast cancer studies: issues of informed consent. J Natl Cancer Inst. 2000 Mar 15; 92(6):452-6. PMID: 10716962.
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    108. Jubelirer SJ, Koenig BA, Bates MC. Acute profound thrombocytopenia following C7E3 Fab (Abciximab) therapy: case reports, review of the literature and implications for therapy. Am J Hematol. 1999 Jul; 61(3):205-8. PMID: 10398314.
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    109. Braune B, Muir D, DeMarch B, Gamberg M, Poole K, Currie R, Dodd M, Duschenko W, Eamer J, Elkin B, Evans M, Grundy S, Hebert C, Johnstone R, Kidd K, Koenig B, Lockhart L, Marshall H, Reimer K, Sanderson J, Shutt L. Spatial and temporal trends of contaminants in Canadian Arctic freshwater and terrestrial ecosystems: a review. Sci Total Environ. 1999 Jun 01; 230(1-3):145-207. PMID: 10466229.
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    110. McConnell LM, Koenig BA, Greely HT, Raffin TA. Genetic testing and Alzheimer disease: recommendations of the Stanford Program in Genomics, Ethics, and Society. Genet Test. 1999; 3(1):3-12. PMID: 10464572.
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    111. Koenig BA, Silverberg HL. Understanding probabilistic risk in predisposition genetic testing for Alzheimer disease. Genet Test. 1999; 3(1):55-63. PMID: 10464578.
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    112. Ersek M, Kagawa-Singer M, Barnes D, Blackhall L, Koenig BA. Multicultural considerations in the use of advance directives. Oncol Nurs Forum. 1998 Nov-Dec; 25(10):1683-90. PMID: 9826836.
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    113. Barnes DM, Davis AJ, Moran T, Portillo CJ, Koenig BA. Informed consent in a multicultural cancer patient population: implications for nursing practice. Nurs Ethics. 1998 Sep; 5(5):412-23. PMID: 9782926.
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    114. McConnell LM, Koenig BA, Greely HT, Raffin TA. Genetic testing and Alzheimer disease: has the time come? Alzheimer Disease Working Group of the Stanford Program in Genomics, Ethics & Society. Nat Med. 1998 Jul; 4(7):757-9. PMID: 9662356.
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    115. Koenig BA, Greely HT, McConnell LM, Silverberg HL, Raffin TA. Genetic testing for BRCA1 and BRCA2: recommendations of the Stanford Program in Genomics, Ethics, and Society. Breast Cancer Working Group. J Womens Health. 1998 Jun; 7(5):531-45. PMID: 9650154.
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    116. Ip M, Gilligan T, Koenig B, Raffin TA. Ethical decision-making in critical care in Hong Kong. Crit Care Med. 1998 Mar; 26(3):447-51. PMID: 9504570.
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    117. Hern HE, Koenig BA, Moore LJ, Marshall PA. The difference that culture can make in end-of-life decisionmaking. Camb Q Healthc Ethics. 1998; 7(1):27-40. PMID: 9523039.
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    118. Young EW, Marcus FS, Drought T, Mendiola M, Ciesielski-Carlucci C, Alpers A, Eaton M, Koenig BA, Loewy E, Raffin TA, Ross C. Report of the Northern California Conference for Guidelines on Aid-in-Dying: definitions, differences, convergences, conclusions. West J Med. 1997 Jun; 166(6):381-8. PMID: 9217449.
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    119. Kelly SE, Marshall PA, Sanders LM, Raffin TA, Koenig BA. Understanding the practice of ethics consultation: results of an ethnographic multi-site study. J Clin Ethics. 1997; 8(2):136-49. PMID: 9302631.
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    120. Casper MJ, Koenig BA. Reconfiguring nature and culture: intersections of medical anthropology and technoscience studies. Med Anthropol Q. 1996 Dec; 10(4):523-36. PMID: 8979237.
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    121. Koenig BA. The power (and limits) of proximity. Hastings Cent Rep. 1996 Nov-Dec; 26(6):30-2. PMID: 8970797.
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    122. Drought TS, Koenig BA, Raffin TA. Advance directives. Changing our expectations. Chest. 1996 Sep; 110(3):589-91. PMID: 8797394.
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    123. Koenig BA, Hogle LF. Organ transplantation (re)examined? Med Anthropol Q. 1995 Sep; 9(3):393-7; discussion 398-9. PMID: 8542441.
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    124. Koenig BA, Gates-Williams J. Understanding cultural difference in caring for dying patients. West J Med. 1995 Sep; 163(3):244-9. PMID: 7571587.
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    125. Orona CJ, Koenig BA, Davis AJ. Cultural aspects of nondisclosure. Camb Q Healthc Ethics. 1994; 3(3):338-46. PMID: 7994457.
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    126. Muller JH, Koenig BA. When is a patient "dying"? Calif Nurse. 1988 Jun; 84(5):4-5. PMID: 3409101.
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    127. Koenig BA. Should anencephalic infants be used as organ donors? Calif Nurse. 1988 Mar; 84(2):8-9. PMID: 3355919.
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    128. Jonsen AR, Cooke M, Koenig BA. AIDS and ethics. Issues Sci Technol. 1986; 2(2):56-65. PMID: 11649684.
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    129. Ashok Kumbamu, Gail Geller, Aaron Leppin, Cara Fernandez, Jon Tilburt, and Barbara Koenig.Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology. The Journal of Alternative and Complementary Medicine. 0(0):1-7.