Jennifer Merrilees, RN, PhD

Title(s)Clinical Nurse Specialist 5, Neurology
SchoolSchool of Medicine
Address550 16th Street, #001
San Francisco CA 94158
Phone415-476-8845
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    Title(s)UCSF Weill Institute for Neurosciences


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    University of California, San Francisco, CA2019Diversity, Equity, and Inclusion Champion Training

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    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Researchers can login to make corrections and additions, or contact us for help. to make corrections and additions.
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    Altmetrics Details PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
    1. Perceptions about dementia clinical trials among underrepresented populations: A nationally representative survey of U.S. dementia caregivers. Res Sq. 2024 Jun 14. Leggins B, Hart DM, Jackson AJ, Levenson RW, Windon CC, Merrilees J, Chiong W. PMID: 38946950; PMCID: PMC11213196.
      View in: PubMed   Mentions:
    2. Clinical Manifestations. Alzheimers Dement. 2023 Dec; 19 Suppl 18:e071649. Chen KH, Chen Y, Levan DT, Paul D, Newton S, Yee C, Merrilees J, Scheffer J, Chen S, Levenson RW. PMID: 39112038.
      View in: PubMed   Mentions:
    3. Care Ecosystem Collaborative Model and Health Care Costs in Medicare Beneficiaries With Dementia: A Secondary Analysis of a Randomized Clinical Trial. JAMA Intern Med. 2023 11 01; 183(11):1222-1228. Guterman EL, Kiekhofer RE, Wood AJ, Allen IE, Kahn JG, Dulaney S, Merrilees JJ, Lee K, Chiong W, Bonasera SJ, Braley TL, Hunt LJ, Harrison KL, Miller BL, Possin KL. PMID: 37721734; PMCID: PMC10507595.
      View in: PubMed   Mentions: 2     Fields:    Translation:Humans
    4. Using personal narrative to promote person-centered values in aging, dementia, and caregiving. Front Neurol. 2023; 14:1167895. Merrilees J, Mayotte C, Vong E, Matice M, Prioleau C. PMID: 37789887; PMCID: PMC10544890.
      View in: PubMed   Mentions: 1  
    5. "Out of the clear blue sky she tells me she loves me": Connection experiences between caregivers and people with dementia. J Am Geriatr Soc. 2023 07; 71(7):2172-2183. Sideman AB, Merrilees J, Dulaney S, Kiekhofer R, Braley T, Lee K, Chiong W, Miller B, Bonasera SJ, Possin KL. PMID: 36917135; PMCID: PMC10500033.
      View in: PubMed   Mentions:    Fields:    Translation:Humans
    6. Outcome measures for Alzheimer's disease: A global inter-societal Delphi consensus. Alzheimers Dement. 2023 06; 19(6):2707-2729. Ellison TS, Cappa SF, Garrett D, Georges J, Iwatsubo T, Kramer JH, Lehmann M, Lyketsos C, Maier AB, Merrilees J, Morris JC, Naismith SL, Nobili F, Pahor M, Pond D, Robinson L, Soysal P, Vandenbulcke M, Weber CJ, Visser PJ, Weiner M, Frisoni GB. PMID: 36749854; PMCID: PMC11010236.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    7. Evaluating In-home Assistive Technology for Dementia Caregivers. Clin Gerontol. 2024 Jan-Dec; 47(1):78-89. Levenson RW, Chen KH, Levan DT, Chen EY, Newton SL, Paul D, Yee CI, Brown CL, Merrilees J, Moss D, Wang G. PMID: 36732317; PMCID: PMC10394113.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    8. Effect of collaborative dementia care on potentially inappropriate medication use: Outcomes from the Care Ecosystem randomized clinical trial. Alzheimers Dement. 2023 05; 19(5):1865-1875. Liu AK, Possin KL, Cook KM, Lynch S, Dulaney S, Merrilees JJ, Braley T, Kiekhofer RE, Bonasera SJ, Allen IE, Chiong W, Clark AM, Feuer J, Ewalt J, Guterman EL, Gearhart R, Miller BL, Lee KP. PMID: 36331050; PMCID: PMC10156873.
      View in: PubMed   Mentions: 3     Fields:    Translation:Humans
    9. Pronoun Use among Caregivers of People Living with Dementia: Associations with Dementia Severity Using Text Analysis of a Natural Language Sample. Dement Geriatr Cogn Dis Extra. 2022 Jan-Apr; 12(1):60-68. Bernstein Sideman A, Wells JL, Merrilees J, Shdo SM, Yee CI, Possin KL, Levenson RW. PMID: 35702160; PMCID: PMC9149456.
      View in: PubMed   Mentions: 1  
    10. Lower activity linkage between caregivers and persons with neurodegenerative diseases is associated with greater caregiver anxiety. Psychophysiology. 2022 08; 59(8):e14040. Chen KH, Casey JJ, Connelly DE, Merrilees J, Yang CM, Miller BL, Levenson RW. PMID: 35315937; PMCID: PMC9283273.
      View in: PubMed   Mentions: 1     Fields:    Translation:Humans
    11. Responding to the Needs of Persons Living With Dementia and Their Caregivers During the COVID-19 Pandemic: Lessons From the Care Ecosystem. Innov Aging. 2022; 6(2):igac007. Merrilees J, Robinson-Teran J, Allawala M, Dulaney S, Rosenbloom M, Lum HD, Sawyer RJ, Possin KL, Bernstein Sideman A. PMID: 35434383; PMCID: PMC9007551.
      View in: PubMed   Mentions: 2  
    12. "Captive by the Uncertainty"-Experiences with Anticipatory Guidance for People Living with Dementia and Their Caregivers at a Specialty Dementia Clinic. J Alzheimers Dis. 2022; 86(2):787-800. Shafir A, Ritchie CS, Garrett SB, Bernstein Sideman A, Naasan G, Merrilees J, Widera E, Flint L, Harrison KL. PMID: 35124641; PMCID: PMC9717709.
      View in: PubMed   Mentions: 9     Fields:    Translation:Humans
    13. The severity of neuropsychiatric symptoms is higher in early-onset than late-onset Alzheimer's disease. Eur J Neurol. 2022 04; 29(4):957-967. Falgàs N, Allen IE, Spina S, Grant H, Piña Escudero SD, Merrilees J, Gearhart R, Rosen HJ, Kramer JH, Seeley WW, Neylan TC, Miller BL, Rabinovici GD, Grinberg LT, Walsh CM. PMID: 34862834; PMCID: PMC8901553.
      View in: PubMed   Mentions: 11     Fields:    Translation:Humans
    14. Use of Services by People Living Alone With Cognitive Impairment: A Systematic Review. Innov Aging. 2021; 5(1):igab004. Rosenwohl-Mack A, Dubbin L, Chodos A, Dulaney S, Fang ML, Merrilees J, Portacolone E. PMID: 33796795; PMCID: PMC7990060.
      View in: PubMed   Mentions: 6  
    15. Emotion Recognition and Reactivity in Persons With Neurodegenerative Disease Are Differentially Associated With Caregiver Health. Gerontologist. 2020 09 15; 60(7):1233-1243. Brown CL, Wells JL, Hua AY, Chen KH, Merrilees J, Miller BL, Levenson RW. PMID: 32293012; PMCID: PMC7491438.
      View in: PubMed   Mentions: 5     Fields:    Translation:Humans
    16. Long-term digital device-enabled monitoring of functional status: Implications for management of persons with Alzheimer's disease. Alzheimers Dement (N Y). 2020; 6(1):e12017. Manley NA, Bayen E, Braley TL, Merrilees J, Clark AM, Zylstra B, Schaffer M, Bayen AM, Possin KL, Miller BL, Schenk AK, Bonasera SJ. PMID: 32548234; PMCID: PMC7293994.
      View in: PubMed   Mentions: 4  
    17. Using care navigation to address caregiver burden in dementia: A qualitative case study analysis. Alzheimers Dement (N Y). 2020; 6(1):e12010. Bernstein A, Merrilees J, Dulaney S, Harrison KL, Chiong W, Ong P, Heunis J, Choi J, Walker R, Feuer JE, Lee K, Dohan D, Bonasera SJ, Miller BL, Possin KL. PMID: 32377557; PMCID: PMC7201177.
      View in: PubMed   Mentions: 11  
    18. Effect of Collaborative Dementia Care via Telephone and Internet on Quality of Life, Caregiver Well-being, and Health Care Use: The Care Ecosystem Randomized Clinical Trial. JAMA Intern Med. 2019 12 01; 179(12):1658-1667. Possin KL, Merrilees JJ, Dulaney S, Bonasera SJ, Chiong W, Lee K, Hooper SM, Allen IE, Braley T, Bernstein A, Rosa TD, Harrison K, Begert-Hellings H, Kornak J, Kahn JG, Naasan G, Lanata S, Clark AM, Chodos A, Gearhart R, Ritchie C, Miller BL. PMID: 31566651; PMCID: PMC6777227.
      View in: PubMed   Mentions: 79     Fields:    Translation:Humans
    19. Association Between Caregiver Depression and Emergency Department Use Among Patients With Dementia. JAMA Neurol. 2019 Oct 01; 76(10):1166-1173. Guterman EL, Allen IE, Josephson SA, Merrilees JJ, Dulaney S, Chiong W, Lee K, Bonasera SJ, Miller BL, Possin KL. PMID: 31282955; PMCID: PMC6618767.
      View in: PubMed   Mentions: 14     Fields:    
    20. Genuine Smiles by Patients During Marital Interactions are Associated with Better Caregiver Mental Health. J Gerontol B Psychol Sci Soc Sci. 2019 08 21; 74(6):975-987. Lwi SJ, Casey JJ, Verstaen A, Connelly DE, Merrilees J, Levenson RW. PMID: 29385515; PMCID: PMC6941495.
      View in: PubMed   Mentions: 9     Fields:    Translation:Humans
    21. Variations in Costs of a Collaborative Care Model for Dementia. J Am Geriatr Soc. 2019 12; 67(12):2628-2633. Rosa TD, Possin KL, Bernstein A, Merrilees J, Dulaney S, Matuoka J, Lee KP, Chiong W, Bonasera SJ, Harrison KL, Kahn JG. PMID: 31317539; PMCID: PMC6898731.
      View in: PubMed   Mentions: 10     Fields:    Translation:Humans
    22. The costs of dementia subtypes to California Medicare fee-for-service, 2015. Alzheimers Dement. 2019 07; 15(7):899-906. Chen Y, Wilson L, Kornak J, Dudley RA, Merrilees J, Bonasera SJ, Byrne CM, Lee K, Chiong W, Miller BL, Possin KL. PMID: 31175026; PMCID: PMC7183386.
      View in: PubMed   Mentions: 18     Fields:    Translation:Humans
    23. Randomized controlled trial of a facilitated online positive emotion regulation intervention for dementia caregivers. Health Psychol. 2019 May; 38(5):391-402. Moskowitz JT, Cheung EO, Snowberg KE, Verstaen A, Merrilees J, Salsman JM, Dowling GA. PMID: 31045422; PMCID: PMC6501812.
      View in: PubMed   Mentions: 34     Fields:    Translation:Humans
    24. The Role of Care Navigators Working with People with Dementia and Their Caregivers. J Alzheimers Dis. 2019; 71(1):45-55. Bernstein A, Harrison KL, Dulaney S, Merrilees J, Bowhay A, Heunis J, Choi J, Feuer JE, Clark AM, Chiong W, Lee K, Braley TL, Bonasera SJ, Ritchie CS, Dohan D, Miller BL, Possin KL. PMID: 31322558; PMCID: PMC7004209.
      View in: PubMed   Mentions: 20     Fields:    Translation:Humans
    25. The Care Ecosystem: Promoting self-efficacy among dementia family caregivers. Dementia (London). 2020 Aug; 19(6):1955-1973. Merrilees JJ, Bernstein A, Dulaney S, Heunis J, Walker R, Rah E, Choi J, Gawlas K, Carroll S, Ong P, Feuer J, Braley T, Clark AM, Lee K, Chiong W, Bonasera SJ, Miller BL, Possin KL. PMID: 30497302; PMCID: PMC6541533.
      View in: PubMed   Mentions: 19     Fields:    Translation:Humans
    26. Life Enhancing Activities for Family Caregivers of people with dementia: protocol for a randomized controlled trial of a positive affect skills intervention. Open Access J Clin Trials. 2018; 10:1-12. Verstaen A, Moskowitz JT, Snowberg KE, Merrilees J, Dowling GA. PMID: 33981167; PMCID: PMC8112203.
      View in: PubMed   Mentions: 4  
    27. Empathic Accuracy Deficits in Patients with Neurodegenerative Disease: Association with Caregiver Depression. Am J Geriatr Psychiatry. 2018 04; 26(4):484-493. Brown CL, Lwi SJ, Goodkind MS, Rankin KP, Merrilees J, Miller BL, Levenson RW. PMID: 29289452; PMCID: PMC5860967.
      View in: PubMed   Mentions: 18     Fields:    Translation:Humans
    28. Development of an adaptive, personalized, and scalable dementia care program: Early findings from the Care Ecosystem. PLoS Med. 2017 03; 14(3):e1002260. Possin KL, Merrilees J, Bonasera SJ, Bernstein A, Chiong W, Lee K, Wilson L, Hooper SM, Dulaney S, Braley T, Laohavanich S, Feuer JE, Clark AM, Schaffer MW, Schenk AK, Heunis J, Ong P, Cook KM, Bowhay AD, Gearhart R, Chodos A, Naasan G, Bindman AB, Dohan D, Ritchie C, Miller BL. PMID: 28323819; PMCID: PMC5360211.
      View in: PubMed   Mentions: 25     Fields:    Translation:Humans
    29. Non-pharmacological Management of Behavioral Symptoms in Frontotemporal and Other Dementias. Focus (Am Psychiatr Publ). 2016 Oct; 14(4):492-498. Barton C, Ketelle R, Merrilees J, Miller B. PMID: 31997962; PMCID: PMC6519601.
      View in: PubMed   Mentions:
    30. The Impact of Dementia on Family Caregivers: What Is Research Teaching Us? Curr Neurol Neurosci Rep. 2016 10; 16(10):88. Merrilees J. PMID: 27541750.
      View in: PubMed   Mentions: 11     Fields:    Translation:Humans
    31. Non-pharmacological Management of Behavioral Symptoms in Frontotemporal and Other Dementias. Curr Neurol Neurosci Rep. 2016 Feb; 16(2):14. Barton C, Ketelle R, Merrilees J, Miller B. PMID: 26750129; PMCID: PMC4790078.
      View in: PubMed   Mentions: 14     Fields:    Translation:Humans
    32. Evaluating and treating neurobehavioral symptoms in professional American football players: Lessons from a case series. Neurol Clin Pract. 2015 Aug; 5(4):285-295. Gardner RC, Possin KL, Hess CP, Huang EJ, Grinberg LT, Nolan AL, Cohn-Sheehy BI, Ghosh PM, Lanata S, Merrilees J, Kramer JH, Berger MS, Miller BL, Yaffe K, Rabinovici GD. PMID: 26336629; PMCID: PMC4549717.
      View in: PubMed   Mentions: 12  
    33. Criminal behavior in frontotemporal dementia and Alzheimer disease. JAMA Neurol. 2015 Mar; 72(3):295-300. Liljegren M, Naasan G, Temlett J, Perry DC, Rankin KP, Merrilees J, Grinberg LT, Seeley WW, Englund E, Miller BL. PMID: 25559744; PMCID: PMC4432918.
      View in: PubMed   Mentions: 44     Fields:    Translation:Humans
    34. Life enhancing activities for family caregivers of people with frontotemporal dementia. Alzheimer Dis Assoc Disord. 2014 Apr-Jun; 28(2):175-81. Dowling GA, Merrilees J, Mastick J, Chang VY, Hubbard E, Moskowitz JT. PMID: 24113564.
      View in: PubMed   Mentions: 26     Fields:    Translation:Humans
    35. Sleep in persons with frontotemporal dementia and their family caregivers. Nurs Res. 2014 Mar-Apr; 63(2):129-36. Merrilees J, Hubbard E, Mastick J, Miller BL, Dowling GA. PMID: 24589648; PMCID: PMC4151390.
      View in: PubMed   Mentions: 19     Fields:    Translation:Humans
    36. Implementation of advanced practice nurse clinic for management of behavioral symptoms in dementia: a dyadic intervention (innovative practice). Dementia (London). 2014 Sep; 13(5):686-96. Barton C, Merrilees J, Ketelle R, Wilkins S, Miller B. PMID: 24445399.
      View in: PubMed   Mentions: 7     Fields:    Translation:Humans
    37. Memantine in patients with frontotemporal lobar degeneration: a multicentre, randomised, double-blind, placebo-controlled trial. Lancet Neurol. 2013 Feb; 12(2):149-56. Boxer AL, Knopman DS, Kaufer DI, Grossman M, Onyike C, Graf-Radford N, Mendez M, Kerwin D, Lerner A, Wu CK, Koestler M, Shapira J, Sullivan K, Klepac K, Lipowski K, Ullah J, Fields S, Kramer JH, Merrilees J, Neuhaus J, Mesulam MM, Miller BL. PMID: 23290598; PMCID: PMC3756890.
      View in: PubMed   Mentions: 76     Fields:    Translation:Humans
    38. Characterization of apathy in persons with frontotemporal dementia and the impact on family caregivers. Alzheimer Dis Assoc Disord. 2013 Jan-Mar; 27(1):62-7. Merrilees J, Dowling GA, Hubbard E, Mastick J, Ketelle R, Miller BL. PMID: 22261729; PMCID: PMC3383924.
      View in: PubMed   Mentions: 28     Fields:    Translation:Humans
    39. The experience of caregiving: differences between behavioral variant of frontotemporal dementia and Alzheimer disease. Am J Geriatr Psychiatry. 2012 Aug; 20(8):724-8. Wong C, Merrilees J, Ketelle R, Barton C, Wallhagen M, Miller B. PMID: 21941168; PMCID: PMC4005886.
      View in: PubMed   Mentions: 10     Fields:    Translation:Humans
    40. Trajectories of behavioral disturbance in dementia. J Alzheimers Dis. 2012; 31(1):143-9. Chow TW, Fridhandler JD, Binns MA, Lee A, Merrilees J, Rosen HJ, Ketelle R, Miller BL. PMID: 22531424; PMCID: PMC4309273.
      View in: PubMed   Mentions: 15     Fields:    Translation:Humans
    41. Advanced practice nursing: meeting the caregiving challenges for families of persons with frontotemporal dementia. Clin Nurse Spec. 2010 Sep-Oct; 24(5):245-51. Merrilees J, Ketelle R. PMID: 20716977; PMCID: PMC2943420.
      View in: PubMed   Mentions: 9     Fields:    Translation:Humans
    42. Cognitive and behavioral challenges in caring for patients with frontotemporal dementia and amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2010 May 03; 11(3):298-302. Merrilees J, Klapper J, Murphy J, Lomen-Hoerth C, Miller BL. PMID: 20222805; PMCID: PMC2908374.
      View in: PubMed   Mentions: 18     Fields:    Translation:Humans
    43. Rest-activity and behavioral disruption in a patient with frontotemporal dementia. Neurocase. 2009 Dec; 15(6):515-26. Merrilees J, Hubbard E, Mastick J, Miller BL, Dowling GA. PMID: 19736599; PMCID: PMC2829101.
      View in: PubMed   Mentions: 7     Fields:    Translation:Humans
    44. An open-label study of memantine treatment in 3 subtypes of frontotemporal lobar degeneration. Alzheimer Dis Assoc Disord. 2009 Jul-Sep; 23(3):211-7. Boxer AL, Lipton AM, Womack K, Merrilees J, Neuhaus J, Pavlic D, Gandhi A, Red D, Martin-Cook K, Svetlik D, Miller BL. PMID: 19812461; PMCID: PMC2760056.
      View in: PubMed   Mentions: 38     Fields:    Translation:HumansCTClinical Trials
    45. A model for management of behavioral symptoms in frontotemporal lobar degeneration. Alzheimer Dis Assoc Disord. 2007 Oct-Dec; 21(4):S64-9. Merrilees J. PMID: 18090427.
      View in: PubMed   Mentions: 20     Fields:    Translation:Humans
    46. Long-term care of patients with frontotemporal dementia. J Am Med Dir Assoc. 2003 Nov-Dec; 4(6 Suppl):S162-4. Merrilees JJ, Miller BL. PMID: 14613593.
      View in: PubMed   Mentions: 7     Fields:    Translation:Humans
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